Safety

We all want and need to feel that our world is safe, and I recently realized that I have not felt safe since Colby was born. Colby's lungs collapsed at birth and he had many upper respiratory issues as a young child. Even though I had a room monitor, several times I woke up to hear Colby gasping for air, struggling to breathe, turning blue. I don't believe I've slept deeply since then.

At three Colby was diagnosed with asthma, at age eight with depression, and on and on. There was always something, or several somethings, that made me believe that if I slept, deeply, something terrible would happen that I could have prevented, had I been awake. Turns out I could not prevent the worst thing that could ever possibly happen.

Close to twenty-five years of sleepless nights became a habit, and old habits die hard. I still don't sleep because I cannot find that sense of peace, of safety. I still wake up every hour and check the door to be sure it is locked. I check that the lights are tuned off. I check the floor to be sure a glass hasn't flown off the shelf by itself and broken, scattering bits of glass I might step on. This is not normal behavior. I know this even as I check, one more time.

This is not a scary, fearful feeling of being unsafe, rather it is the feeling that I left something important undone. It does not take a rocket scientist to figure out that because I could not save Colby that I am now overcompensating. This is yet another part of grief, another part of the process grieving parents experience. I am told my feelings, my behavior, are not unusual. Grief for parents who have lost a child is a lifelong process, and this is part of that process.

Now that I understand, I find if I talk to myself I can sometimes talk myself out of jumping up yet again to check something. I can calm my rising anxiety and ward off another frightening panic attack. And sometimes, I can reassure myself that my world is safe, even though it will never, ever, be right or whole again.

Bus

The big bus parked in front of my house looks like an aerodynamic whale in a black tuxedo. The bus pulsates and I feel the vibration of its energy. There are large wheels on the bus, almost cartoon-like wheels, but I know they are only for looks. This bus hovers and flies through the air, through space and time.

It is dark outside. The two people at my door are dressed in black business suits. One is a woman a few years younger than I am with dark red, shoulder-length hair. Her hairstyle is from the 1960s and her face is lined and severe. She is also slightly shorter and carries a walkie-talkie. The other person is a tall, thin, baby-faced man with dark curly hair who is probably in his thirties.

The two people and the bus are here for Colby. Colby is ready and waiting, and is eager to go. He has a duffle bag packed and gives me a hug and a kiss before he heads out the door. I try to grab him, to pull him back. I am frantic. Colby musn't leave! I know if he leaves he will not return. My fear and anxiety grow and the woman blocks the door as I try to run after Colby. She is surprisingly strong. "It's not your time," she says. I understand now that the two people are here not to escort Colby, but to keep me from following him.

Colby turns before he enters the gaping mouth of the whale bus. He waves. He is happy. "I'll check in on you," he says. Then he is gone. The two people and the bus disappear, and I am standing alone in my open front door, the night breeze swirling around my broken heart.

Events

I frequently get the comment, "But you always used to . . .." You can then fill in the blank: Go to the movies, attend business receptions, frequent favorite restaurants. The list is actually quite long. Many things I did regularly before Colby passed away I no longer do and there are several reasons for that.

One is that since Colby passed I have developed, not a sensory processing disorder, but something similar to that. Lots of sights and sounds, lots of people milling about, snatches of many different conversations, all overwhelm me. I can't think, can't breathe, can't focus. It is all too much. This apparently, while not common, is not unusual when someone is struck with devastating grief. It can last for years.

Another reason is that it takes me longer to do the things I do every day. I am not sure why that is but it takes more focus, more energy, to get my daily tasks done. The result is I am continually behind and when I catch up, I am physically and mentally exhausted.

When I decline an invitation I do hope the person extending it does not feel I am ejecting them or their event. That is not my intention. It is not how I feel. I recently read a great article by another grieving parent on CNN.com. I hope you'll check it out. The author is very eloquent in his grief, even though, for him, eleven years have passed. Grief is definitely a journey, but right now, today, I am not sure there is a destination.

Words

Music helps most people through hard times. For me it is, always has been, the beauty of words.


Grief grabs us by the throat and shatters our world into a million pieces.
Some days it numbs us to the bone and turns us into walking zombies.
Other days it pierces our hearts and forces a scream so loud it scares us into silence.
John Bowlby, M.D.

Your absence has gone through me
Like a thread through a needle
Everything I do is stitched with it’s color
W.S. Merwin

He had learned the worst lesson that life can teach––that it makes no sense.
And when that happens the happiness is never spontaneous again.
It is artificial and, even then, bought at the price of an obstinate estrangement
From oneself and one’s history . . . .
Stoically he suppresses his horror.
He learns to live behind a mask.
A lifetime experiment in endurance.
A performance over a ruin.
Philip Roth

There is no tragedy in life like the death of a child; things never get back to the way they were.
Dwight D. Eisenhower

Healing may not be so much about getting better, as about letting go of everything that isn’t you––all of the expectations, all of the beliefs––and becoming who you are.
Rachel Naomi Remen

Assimilation

From Colby's Notebook
Ain't it funny, how we serve money
Ain't it funny, how we die for our country
Ain't it funny, we were born a slave
I'm not laughing, I won't behave

Since Colby passed I sometimes think about getting in my truck and driving to the ends of the Earth so I can live in a cabin in the middle of nowhere. Since he passed, my brain does not function as it did before. There is too much input, too many sights and sounds for me to process. There is just too much of everything.

Oh, how I wish the world would stop for a year, of maybe two, so I could sit quietly and wait for my brain to catch up. I'd like to take time to learn to breathe again, to breathe without the catch in my chest that happens every time I breathe in, the catch that reminds me, every time, that Colby is gone. I want to learn how to wake up every morning without the horror of remembering that my son, my family, is gone. Forever. I want to learn how to go to sleep without crying and to eat without the food tasting like sawdust. I want to learn to live this new normal that is me without Colby, and in today's busy world, I find that very hard to do.

Time is a luxury in so many ways. I'd love the luxury of one more minute with Colby. I'd love the luxury of time to assimilate Colby's passing into my life and integrate it into what is now me. For this is a new me. I am no longer the person I before Colby passed away. I am not sure who this new me is. I need to familiarize myself with me, but, there is no time.

Isn't it interesting that the word familiarize is so close to the word family? I am my family now. And, as the first year without Colby is now history, I find myself moving into a new phase of understanding, of learning. I just wish the world would slow down and allow me the luxury, the time to catch up. Then maybe I could find a way to assimilate it all.

Time

Someone asked me a few days ago if I could go back in time, what was the year and day I would go back to that would have changed the course of Colby's life. It is an interesting question on many levels and I have given that hypothetical concept a lot of thought with no real conclusions. On one hand there were many factors that contributed to Colby's passing and nothing would have changed the fact that he had a genetic mental illness. If I had somehow tried harder earlier on to get him better health care, if I had given 1001 percent rather than 1000 percent, the outcome could have been different, or it could have remained the same.

Then there is the idea that interfering with Colby's life plan could upset the balance of the universe. Most are familiar with the idea of the butterfly effect. The theory is that a butterfly could potentially beat its wings on one side of the earth and cause a hurricane on the other side of the globe. It is basic cause and effect. If I traveled back in time to change the details of Colby's life, how significantly would that change the balance of the universe? Because Colby passed away, I believe several others did not. Many other people have told me they took notice of Colby's death and made changes so their lives would not end up the same way. What if Colby lived and they did not?

Then there is the thought of "what is supposed to be, is." Colby often said when he was a young child in elementary school that he would not live long enough to marry, have children, or turn thirty. Was his life lived just as it was supposed to? Or could it have been altered so he lived a long and productive life without negatively impacting the course of anyone else's life?

Of course, we'll never know. The question was put to me, I believe, precisely for that reason. There was not one defining moment that took Colby away. It was many moments over many years. And, it may well have been his destiny. Right now, today, I have to believe that what Colby instinctively knew as a child was right. The details might have differed, but the end result could probably have been the same. This hypothetical thinking will not bring him back, but it does help me put some things into context. The one think I clearly know is that I miss Colby more than words can ever begin to express.

Hope

It's been a year and a day since I found out my only child had passed away. I still look toward the door each evening, thinking he will be bounding through it any minute now. Sometimes I pick up the phone to call him, to tell him something he might find interesting or amusing, only to realize when I begin dialing that he is no longer here. Each instance of recognition is like learning of his death all over again.

A year is a milestone. As a society we celebrate birthdays, anniversarys, and holidays on an annual basis. As I think back with a year's worth of perspective to those terrible early days of shock and disbelief I realize now that they will never fully leave me. Those days will always be with me, as will Colby's absence. But his life will also be with me. The good times, the memories, will be there. I continue to be amazed at all the people he touched, the lives he changed for the better. Not a week goes by that someone lets me know Colby made a difference in their life. I am so proud of my son because I know it was often hard for him to stay positive when he was hurting inside so badly.

Two days ago, on the first anniversary of his passing, some of his friends and my friends planted a tree in Colby's honor and memory. It was a peaceful, communal effort in a quiet spot by a creek where Colby played as a child. After, everyone stayed to visit and catch up, and some placed personal mementos on the tree's branches. It was good to see everyone. Good to know Colby is still remembered. Good to know others cared about him, and his life. Good to know how much he was loved. Is loved.

Some friends, both his and mine, were not able to be there and while I missed their presence, I understand that grief is an intensely personal journey. This past year has taught me that I have no idea from one moment to the next what I will be feeling or thinking. Sometimes I might be up to facing a group of people, more often not. Those who were not there know where the tree is planted. Several have told me they have already visited it privately, as I will also do.

Many parents who are ahead of me in this process of grief tell me the second year is often worse than the first. This is because the shock has worn off and the finality of the tragic loss has set in. I don't see how anything can be worse than this past year, but time will tell. Today, I can see that I have progressed in my journey of grief. I have not come very far or very fast, but I have had movement. All I can hope for is that a year from now I can look back and see that I am further along the trail than I am now. That's all I can expect. Hope.

Should

In four days it will be one year since Colby passed. I haven't posted much in the past few weeks because I have such a swirl of emotion and thought and feeling that I can't begin to grasp onto any of it. What made sense to me six months ago no longer does, or at least it is less concrete than before. Now, half formed thoughts and feelings float through my brain and then disappear as soon as I try to define them.

I have spoken with a number of grieving parents about the first anniversary and just like the way they grieve, these parents honor this day in many different ways. There is no "should" or "should not" when it comes to this. There just is. In one way it is comforting to know that whatever I  feel or do is correct. On the other hand it is a bit scary not to have quantifiable bench marks to achieve.

Some parents tell me that at the one year mark they are still in denial. They tell themselves their son or daughter is on an extended vacation overseas or in jail or part of the witness protection program. Other parents keep themselves grounded by visiting their child's grave every day. These coping strategies are as individual as the parents themselves. My strategy is that I talk to Colby. I'd like to think he hears me, but if not, it helps me cope, helps me process this undefinable loss.

To honor Colby's first angelversary several of his friends, my friends, and I will plant a tree. Maybe this will be something we do every year. Maybe not. It's a way to honor Colby's life with a living, growing thing and with something that will give back to our environment. Colby would like this, I think. And maybe Colby will be with all of us four days from today. Maybe I'll tell myself that he will be. Or maybe not.

Fourth

The Fourth of July was hard. These holidays either cause me great anxiety before the day and then are a non-event, or smack me flat from behind. The Fourth of July smacked me good.

I have many good memories of Colby on July Fourth. When Colby was three he and my Mom did the polka for hours before and during the fireworks. They had a wonderful time.

There was the year Colby was about six, when the 4th fell on a Sunday. Tennessee celebrated the Fourth that year on the third and Colby participated with his t-ball team in a parade and then won the t-ball all star championship. Then we flew to Minnesota and celebrated again the next day. By the fifth, we were really tired!

When Colby was about ten, we took our dog, Sundance, to a Fourth of July parade in Minnesota and laughed for years at the face Sundance made when the bagpipes came by. Poor Sundance, that was one of the few life experiences he had that he did not fully enjoy.

Then there were many really hot Fourths that we spent in the lake at my mom's, the years we had picnics, or went to a Twins baseball game, or went to a movie. Now it is so hard to deal with the fact that those years are gone. They are in my past, our past. I will never again share the Fourth or July, or any other holiday with my son. Life has turned into a really, really bad dream. But it is a dream I must live with and learn to make the best of. And, somehow, I will.

This year Mom and I went to the horse races and visited with her friends. Then, later, I sat on the dock with my dog, Abby, and watched as more than a dozen people set off fireworks across the lake. It was a nice time, but I so wished Colby was there to share it.

Coffee

My mom and I are at a coffee shop. It is one of those trendy places with couches and easy chairs haphazardly draped over the floor. Recorded instrumental music plays softly in the background. Young women with dark, spiky hair and black aprons tied around their waists serve coffee and pastries. They wear brown short-sleeved button down tops and short black skirts to go with the black aprons. The walls are painted brown and the furniture is all varying shades of tan, brown, and a deep maroon. It could be a dark, drab place. But it is not. It is cozy, almost den-like. It is comfortable.

Mom and I place our beverage orders. And then we receive them. Then we wait. As usual, he is late. Then he arrives with a flurry of hugs and apologies. Colby looks good, looks happy. He is not as relaxed as when I have seen him before but this, he says, is because he is busy. Colby knows all the waitresses by name and they treat him as if they know him, as if they are his friends. He has lots of friends, they tell me.

Colby and I take our beverages out to a porch. It is the porch of an old farm house and there are a lot of tall leafy trees between us and the road in front of us. The porch and its accompanying railing is covered with peeling white paint. Colby sits on a chair facing me and I sit in the porch swing. It is hard for mom to get around so she stays inside. "They will let her know what I am doing these days," Colby says, meaning the waitresses.

Colby catches me up on his activities. He is busy with a variety of things and I am so caught up in drinking up the sight of him that I forget to listen. I tell Colby that I wish I could see him more often, that I wish he still lived here with us. He looks puzzled. He frowns that slight frown and his eyes look quizzical. "But I am always with you," he says. "I am always there."

Then Colby looks directly into my eyes and it is his gaze that I see when I wake up.

Ambulance

Today an ambulance pulls out of a medical clinic. The emergency vehicle is right in front of me and travels at normal speed. This is the same clinic where, when Colby was about nine, a doctor called an ambulance when Colby was having an asthma attack.

Then, Colby had been to see a doctor several times in a ten day period for an upper respiratory infection. It turned into strep even though he had been taking antibiotics and, as was typical whenever Colby got sick, his breathing deteriorated. I called his regular clinic and they were closed as it was a weekend. They suggested we try a walk-in clinic. We did and while there, Colby's breathing went from bad to worse.

After the examination the doctor stepped out of the room. A minute later we heard sirens and the doctor explained he had called an ambulance. The clinic was not equipped to treat Colby in his current state. This was certainly not our first trip to the hospital due to asthma, but it was the first time Colby had gone in an ambulance. I followed the vehicle, which was driving without sirens at normal speed, to Vanderbilt Hospital. Half way there the lights and sirens came on and my heart jumped into my throat. A block later the flashing and noise stopped and the driver later explained to me they were "playing" at Colby's request.

That trip resulted in a several day hospital stay and I think of that time now, as I follow this ambulance for a mile or so. I hope whoever is being transported will be okay. And I hope whoever is being transported is well enough to "play" with the lights and siren.

First Year

As I approach––as we all approach––the first anniversary of Colby's passing, a therapist suggested I compare Colby's first year on Earth with mine. It's an interesting concept and was quite an eye opener for me. I had never thought much about my first year. However, as my parents split around the time of my first birthday, I realized for the first time that there could have been a lot of fighting. I know the house we lived in was tiny. How much of the yelling was I able to hear, to process? As an only child, it would have been just my parents and me. I believe my dad traveled, so my mom was also probably often overwhelmed in caring for a newborn by herself. For better or worse I will never know how that all affected me, although I am sure it did. After my dad left my mom and I moved in with my grandmother. My mom lives in that house still today.

Colby's dad, on the other hand, left when Colby was just five weeks old. After that it was just Colby and me, and fortunately for me, other than continual resperatoy infections, Colby was a good baby and a good sleeper. When Colby was six weeks old I found a job. Despite my wanting to stay with Colby during the day we had to eat and have shelter and the only way that would happen was if I worked. So, I placed Colby in the daily care of a wonderful grandmotherly woman who had nine grown children of her own. There was only one other child there, a girl who was about six months older than Colby, so he had someone to play with and watch and learn from during the day. In the evenings he and I did "babycizes" (baby exercises), which were in vogue at the time. Colby had excellent athletic ability and hand/eye coordination throughout his life, so maybe some of those early exercises paid off! We also read in the evenings, as I imagine my mother read to me. Colby and I lived in a mobile home in the country and the home was probably a little larger than the one I lived in my first year.

So, my dad was around my first year, Colby's was not. I stayed at home during the day with my mom while Colby was in the home of an older caregiver. I was not around other babies while Colby had an older child to play with. I probably experienced some fighting. Colby and I led a quiet existence at home.

What this all means, I do not know, but I do know that I will think about it. I am sure most of us rarely, if ever, have tried to visualize what our first year was like. It is an important year that shapes us in many ways. Thinking about those first years has given me empathy for my mother, and also empathy for myself. It is not easy to care for a baby no matter what the circumstances, but I believe every mother does the best she can. I know I did, and then some.

Religion

From the time he was small Colby was interested in world religion and over the years he studied many different forms of worship. The bulk of his personal library was filled with books on Christianity, Hinduism, Buddism, the Jewish religion and others. I remember when he was about fourteen he was so excited to discover that all of the religions he studied had one thing in common: a rule that you should "do undo others as you would like others to do unto you."

Recent studies have shown that those with schizophrenia are often very interested in religion and a 2002 study found that 80 percent of people who are severely mentally ill in North America use religion as a way to better cope with their illness.

I am not sure whether Colby's interest in religion had anything to do with his mental illnesses. I do know that Colby found this prayer several years ago, and it often brought him peace. It is an old translation of "Our Father" from Aramaic to English, rather than from Aramaic to Greek to Latin and then English.

Our Father

O cosmic Birther of all radiance and vibration!
Soften the ground of our being and carve out a space
within us where your Presence can abide.

Fill us with your creativity so that we may be
empowered to bear the fruit of your mission.

Let each of our actions bear fruit in accordance with our desire.
Endow us with the wisdom to produce and share
what each being needs to grow and flourish.

Untie the tangled threads of destiny that bind us,
as we release others from the entanglement of past mistakes.

Do not let us be seduced by that which would divert us
from our true purpose, but illuminate
the opportunities of the present moment.

For you are the ground and the fruitful vision,
the birth, power and fulfillment,
as all is gathered and made whole once again.

Caring

I'm not sure when I stopped caring about, well, a lot of things. I only realized it when another grieving parent in a support group mentioned that she just didn't care about anything any more. The house was not clean? So what? She was late for an appointment? Big deal. I, too, find myself feeling the same way.


Not that I don't care, intensely, about other things. The oil spill, endangered species, my friends. But the fact that my tomato garden has weeds has no meaning for me anymore. My counselors say this lack of caring is another side of grief.

Studies at the University of Western Sydney in Australia show that the grief of parents after the loss of a child is more intense and prolonged than that of any other loss, and follow-up studies show that anxiety and depression may last four to nine years after the loss of a child. When a child dies suddenly, as Colby did, parental grief may become complicated by post traumatic stress reactions, so that the parent has to deal with the interplay of both trauma and grief. There is just not room in the human brain for all the thoughts, feelings, and emotion so some of them have to go. Like caring.

Maybe someday I will once again be bothered by weeds or the fact that I am late. Maybe I will once again care about the dust bunnies under the couch. Maybe someday I will wake up and realize that it no longer hurts to breathe and the hollowness that permeates my insides is gone. Maybe. Someday.

Movement

I have a new "yard guy." My mailman is new and the neighbors behind me have a new dog. Colby has not met either of these people, or the dog, and that is another reminder to me that life for those of us who are still here goes on. There is movement in the progression of life and that movement does not include Colby. That thought makes me incredibly sad.

Every day I am reminded that Colby is not here, at least not in physical form. I pass his favorite drinks at the supermarket and put several in the basket . . . and then take them back out. My cable provider requires me to install new converter boxes, something that is not one of my strengths when it comes to skill sets. Colby could have done it when he was four--and that is not an exaggeration. I, meanwhile, will most likely spend and entire frustrating day and still not get it right. I find (yet another) pair of his socks (in a box), wash them and begin to put them in his sock drawer. Then stop.

Counselors say that the mind of a grieving parent is overloaded similarly to that of survivors of post-traumatic stress syndrome. That's why we "forget" our child is no longer here, why we have trouble focusing or remembering to do things we've done every day of our lives. It's one of the many reasons why we eventually turn into different people than we were "before."

That change, or the evolution in our stages of grief, is another movement away from our beloved child. We must go on without them, yet every time we turn around their absence is a gaping hole in our lives. I greet the new yard man. Wave at the new postman and introduce Abby, my dog, Colby's and mine, to the new dog behind us. I do all of this in a wave of grief, for they are more reminders that Colby has really and truly moved on.

e e cummings

Colby liked the poet e e cummings, mostly, I believe, because cummings wrote many poems in lower case and with little, if any, punctuation. Colby hated punctuation. He felt it was limiting, and who is to say he was wrong? Words aren't always for the writer to convey. Sometimes they are for the reader to interpret.

Here's the beginning one of Colby's favorites:


why must itself up every of a park
why must itself up every of a park
anus stick some quote statue unquote to
prove that a hero equals any jerk
who was afraid to dare to answer "no"?

Here's a favorite of mine:

i carry your heart with me
i carry your heart with me
(i carry it in my heart)
i am never without it
(anywhere i go you go, my dear; and whatever is done
by only me is your doing, my darling)
i fear
no fate (for you are my fate, my sweet)
i want
no world (for beautiful you are my world, my true)
and it's you are whatever a moon has always meant
and whatever a sun will always sing is you

here is the deepest secret nobody knows
(here is the root of the root and the bud of the bud
and the sky of the sky of a tree called life; which grows
higher than the soul can hope or mind can hide)
and this is the wonder that's keeping the stars apart

i carry your heart (i carry it in my heart)

ee cummings

Snoqualmie

 Colby on his 4th birthday. Snoqualmie was 28.

Today would have been Snoqualmie's 49th birthday. Snoqualmie was the horse I had as a child, and then was Colby's horse when he was small. The bond I had with her and then that Colby had with her was amazing. I never had a moment of worry or doubt about Colby's safety if he was playing with Snoqualmie. He'd climb up her mane and ride her in through the pasture with no halter or bridle, just guiding her by pulling left or right on her mane.

Sometimes they'd amble along, a Civil War soldier and his horse coming home from battle, complete with cardboard guns and a military cap we found at a thrift store. Other times they'd gallop thrrough the field, a pirate ship and her captain escaping the enemy (which was sometimes our dog, Dexter, or less often, our cat Bootsie).

Colby never fell off. Snoqualmie would never have allowed it. If he got off balance, she shifted underneath him and gently slowed. She was quiet and patient with Colby, but she knew he was important to me and took good care of him.

Snoqualmie passed away when Colby was six and she was 31. She'd had a stroke a few days before and finally got down and could not get back up. One thing she loved to do was eat, so as I held her head in my lap in a field of trees as I waited for the vet, Colby went to the barn for the grain. For once she could have all she wanted. She licked handful after handful from Colby's little hand and when it was time, I sent Colby to the house. She is buried there, underneath the trees. Even after we moved away from that house, Colby and I visited her at least once a year.

Today I like to think that they are together, galloping off to new adventures in heaven. I had each of them with me for 23 years. First Snoqualmie, and then Colby. Each was my best friend and I miss both of them more than words can say. Happy Birthday, my Fat Girl.

People

Today I go to a busy annual event. There are several hundred people there. Most I have not seen for a year or more. I have stressed over this event for days. So much so that I get zero sleep the night before. It is work related. I have to go. Some people know that Colby passed, others won't. But they all know Colby, because for years he used to accompany me to this.

Just as I imagined, at the event I had two kinds of conversations. The first went something like this:

"I am so, so very sorry about Colby. You poor thing. How are you doing?"

"I'm fine. It's a bit of an emotional roller coaster, but I'm okay." This is my standard answer. People really do not want to know that I cry every morning when I wake up and every evening before I fall asleep. They don't want to know that Colby's absence still hurts with every breath I take and that it is a rare occasion when I can get in the truck and go from Point A to Point B without having to pull off the road because I am crying so hard.

"Really? Are you really okay?"

"Yes. It is very hard, but I am okay."

"Really?"

These people do not understand that I don't want to go into details in this very public setting. I try not to be rude as I turn to find something to busy myself with, or someone else to talk to. But the someone else invariably jumps into conversation number two:

"Hey! Hi! How are you? Long time no see? How's that boy of yours?"

"I'm sorry to say that Colby passed away last July."

"Ha, ha! No, how is he, really?"

"He passed away."

When they get what I am saying, it's a real conversation stopper. That's when they turn and try to busy themselves with something or find someone else to talk to. In either instance, conversation is awkward. I feel like I have the plague as the crowd parts every time I walk through it. Faces turn away. The few that don't are overly solicitous. "Oh, you poor, poor thing," they say as they pat me on the back.

And people wonder why I don't go out much anymore.

Better

Sorry for the lapse in posts and thank you all for emailing me. I am okay, just still very tired. Colby was always the one who could tell from the sound of my voice or the look on my face that I was not well. He saw and heard long before anyone else, including myself, that I was too tired, or coming down with something. Now, with Colby gone, without his eagle eye and keen ear, I find myself doing too much and not stopping to rest.

I feel as if I have not really rested in years. A week or so ago my symptoms had reached the scary stage and I knew I was either sick with something very serious or long past exhaustion. Fortunately, now that I have had a little rest, I believe it is the latter. I am just tired and it is a tiredness that won't go away with a good night's sleep--or even two night's sleep. This is a deep mental and physical and emotional exhaustion that will take much time and rest to overcome and I am taking steps to make that happen. Ten hours of down time every day rather than four, half of an over the counter sleep aid if I can't fall asleep, at least two days off a month.

I have not had a vacation in over thirty years and in past years I have only taken a few days off the entire year. It's not that I am a martyr or a glutton for punishment. It was a matter of survival, of managing my work load, Colby's troubles, and my mom's aging. But, Colby was always there to say, "Stop, you are getting sick." Without that touchstone in recent months I have pushed myself too far, for too long.

The good news is that I am now much more aware of what my body is telling me. I am now feeling better than I have in a long time, although I know I have a long way to go before I am where I need to be. I am fortunate that I am able to rest during the day when I need to. For the most part I can get my work done at any hour of the day or night. In that, at least, I am blessed.

Art

Every year for Mother’s Day Colby gave me something he created. It might have been a drawing, something he made from wood (such as a garden stool), or a poem. A few years ago Colby gave me the painting you see at the top of this post. In keeping with his belief about using everything and throwing nothing away that had any possible use, this painting is done on a piece of cardboard. For this painting he also used paint that was left over from other projects.

The reason I like this painting so much is not just because I think it is beautiful, it’s because the gold in the mountains is paint that was left over from the time we went to Bowie Park in Fairview and gathered pine cones that we tipped with gold and gave to friends as Christmas gifts. The red is from when Colby made a CD storage bin out of popsicle sticks for my mother and painted it. The cardboard is from boxes of books I had delivered for a book signing that Colby helped me stack, and the darker background is paint that was left over from the time Colby and I painted my toy box from when I was a child. The toy box was more recently his, and now resides in the spare bedroom as a bookshelf. Before it was my toy box, it was a storage chest during WWII when my mother was in the Marines.

This is just one of many paintings that Colby did. Most are abstracts and reflect the way he was feeling at the time he painted them. All make excellent use of color and design. Today as I clean out more “stuff” from his room I find his stacks of bare canvasses, his pains and his brushes. In addition to the traditional canvasses most artists use I find several blocks of wood, a small piece of corrugated metal, and two old skateboards—minus wheels. His brushes consist of a small assortment of the usual, plus a number of sponges, table knives, a toothbrush, and a few small scrub brushes. I am so deeply and heart-breakingly saddened that I will never see what work of art Colby planned to create with his collection of “stuff.” I know it would have been absolutely awesome.

Writings

I try to pinpoint what I miss most about Colby. It is everything. Absolutely everything. But one of many specific things I miss is conversation with him. Colby was a wonderful conversationalist. I miss that. I miss talking to him. I miss hearing his thoughts, his viewpoints, his ideas. In the absence of speech, I have bits and pieces of his writing. Colby was not a writer like I am. Instead, he was a poet, a lyricist, a songwriter. But his writings are a glimpse into his inner soul, for he only wrote about what truly mattered to him.

Instead of using one notebook, Colby had the habit of writing down lines for poems, thoughts, and songs on pieces of scrap paper, or a page or two of many notebooks. Over the past months I have found a number of these bits of writing. I have seen many of them before, but some are new to me. The writings remind me who Colby was at his core, and they keep his thoughts and beliefs fresh in my mind. For example:

Even if I make a mil

I’ll still buy my clothes at Goodwill

Those simple words remind me of Colby’s dedication to recycling, of using something completely and not throwing it away if it still had some life, or in this case some wear, left in it. Colby felt we use too many of our natural resources and do not value enough what the Earth provides. In that, I believe he was right.

Society is in rapid decay

With the crime rate soaring

People are running wild

Greed, power, food additives

A giant corporation

Controls every aspect of

Society from war to entertainment

To organ transplants

Everything is polluted

Life has never been cheaper

Like the lines above, much of Colby’s writing was about unfairness, injustice, and problems in our society. Colby was about valuing human life, finding meaning in our days, and living a life filled with natural products. Someday I will compile his thoughts, his written words. We can all find something of value in them, some thing to think about. But for now I will continue to search for and save them, and revel in each new find.

Tired

I am so tired. Granted, I had a busy week, but it is more than that. It is the tiredness of grief. I want to sleep for a month, or two, or maybe even for a year. This is not depression tiredness, but the exhaustion of my soul. I listen to counselors, to experts, to other parents who have lost a child, or in some cases, have lost children. One thing is common to them all: each believes there is no right or wrong way to grieve. We each have an individual path to follow and we have to do what is right for us.

My problem is that I don't know what that is. Do I give in to the exhaustion and sleep for a week? I have much to do and am already behind. Will I catch up if I am rested? Will the rest even restore my energy or will I forever stagnate in this exhaustion? Is this tiredness the normal tiredness of grief or is there something more going on? If I do rest, will I ever get back on track? Or, will I lose focus entirely and not be able to find the slippery traction of my path?

The thought of finding an answer to these questions is so mind boggling to me that I can't begin to sort it all out. I miss Colby so much. Every time I breathe, every time I turn around, everything I do. He should be here, yet he is not. Many grieving parents say the second year is worse than the first. The shock wears off and the "real" grieving begins. If that is true, how can I possibly put one foot in front of the other and finish this first year, much yet the second, and the third and the fourth? The only thing I know is that I have to. Somehow I have to because this is what my life is now, and I have no other choice than to continue on. Other grieving parents find a way. If they can do it, I can do it, too.

Pity

Since Colby passed I do not attend many public events. This is for many reasons. A big one is that a lot of people moving around, along with several conversations going on at once, is still hard for my brain to process. I am overwhelmed with all the sensory input and become very anxious. This is a good sign that I am still reeling from Colby's passing. I am doing better, but have a long way to go. Someone in one of my support groups said it well in that grieving parents never "get over" or "get past" the death of their child, they just learn how to cope with it. I am still learning.

But another reason I do not attend events is that I do not want to see the pity on people's faces when they are confronted with me. People do not know what to do with me now that I am a grieving parent. People feel they cannot talk about kids or family or holidays or memories or the future because I no longer have any of that and it will upset me, so there is nothing left to talk about. I am, it seems, a great conversation stopper.

I do not want anyone's pity. I do not want to be treated like a fragile individual, even though in many ways that is exactly what I am. If a conversation bothers me, and yes, sometimes some conversations do, I will find something else to do, someone else to talk to. This is my problem, not everyone else's. My feelings are still raw, my emotions are still on a huge roller coaster. These are my issues to work through and pity from others serves no purpose.

Someday I will be able to handle the moving people and the varied conversations. It may not be today or tomorrow or even six months from now. But someday I will. Not treating me with pity will help speed this along.

Caves

When Colby was six and seven we went with his cub scout group to stay overnight at Cumberland Caverns, a large cave system in Middle Tennessee. Each year we went, Colby was the youngest in the group and the route our guide took us on was quite ambitious. We scaled steep rock walls, crawled through long narrow tunnels, and jumped over wide crevasses––and Colby loved every minute of it. Colby kept up with the older boys (the eight and nine year olds) just fine and the experience gave him a life-long interest in caves.

In caving, he and I both learned that it is important to have three sources of light with you at all times. Because, when your light goes out there is a blackness like you have never experienced. It is an inky, thick, overwhelming darkness that seeps into your pores. It is not necessarily a terrifying blackness, but it certainly is a colorless void that I learned to respect.

Grief for a child is like the blackness of the caves. It is ever present and becomes part of you. It is a thick, fluid presence that never goes away. Sometimes it is a little less dark, a little less thick, but always, it is there. I wish I could express in words how profoundly Colby's passing has affected me, how completely the death of any child affects his or her parents, but I have not yet been able to wrap my brain around that. Perhaps I never will.

What I can say, however, is that I hope very much that anyone who has living parents who reads this will be careful with their lives. We humans take chances with our lives every time we step into the street, ride in a car, or take a pill. I want to say, yes, it can happen to you. You can be the one who is in a car accident. You can be the one who is in a house fire, or drown in a pool. I would not wish the pain of a child's death on my worst enemy, so please be careful with your lives. Please be aware of what is going on around you. Please think before you act. Please do not put another mom or dad through the darkness that so many of us grieving parents live with every day.

Depression

There is a difference between grief and depression. Grief is the normal process of reacting to loss and can include anger, guilt, sadness, anxiety, despair, and other problems. Depression interferes with the ability to work, sleep, eat, and enjoy once-pleasurable activities.

Those who are grieving can also be depressed, and those who are depressed can be grieving, although that is not always the case. But, the line is fine. I know that since Colby passed I waver on both sides of the line. My grief is all encompassing and based on medical information and other parents who have lost a child, I know it is not likely to ever go away. Over time it may soften, but now, on some days, the grief is so heavy I know there is more going on. On those days, depression beckons.

Colby was depressed for much of his life and began seeing a counselor for grief and depression when he was eight. His grief was due to the loss of his beloved dog, Dexter, who died of old age. After a time his grief went away. The depression did not. Colby's depression sometimes lifted, but even when it didn't most days he was able to smile over his pain. I admired him for that, because he tried so hard to not let his depression interfere with the lives of those around him. For years we tried various treatments. For him, nothing worked. For both of us, that was frustrating and sad.

While I grieve for Colby, there is also grief for other losses in my life. Just about everyone my age has experienced multiple losses and for me they are all tied up together in a big tangled knot that I fear I will never unravel. One counselor said the reason my compounded grief and loss has not spun me into  depression is because it has prepared me for the years I have ahead, alone, without family. The counselor likened me to a warrior. That may all be true, but the last thing I feel like is a warrior, and the last thing I planned for my life was to spend the last half of it without family, even though that is the way things turned out.

I'd give anything if my grief was not a reality. If Colby's medical team had gotten a handle on his depression when he was eight or ten or even twelve years old, then maybe he would still be here, I would not be grieving and would still have a family to celebrate future milestones and holidays with. Or, maybe, the outcome would still be the same. One thing is for sure, there are no guarantees. That's why each of us should live life to it's fullest and enjoy what we can today, for neither grief or depression can change the past or the future.