Stress

The process of grieving is tiring. I wake up every morning exhausted and wish I could take a day, or two, and just stay under the covers. Stay in bed where I can sleep, rest, where I can restore my energy, revive myself for the coming day of grieving. But I can't. I have work I must do. I get up feeling so tired that I must have the flu, mustn't I? But I don't. I just have grief.

Grief for one's child is ever present. I round a corner or see a flash of something that triggers a memory and even though I am engrossed in something else, the grief comes flooding back in. You never know when it will overcome your being, so you are always on edge, always getting ready to prepare for the avalanche of emotion, of loss. I never feel relaxed. I am afraid that if I do, the grief will choose that specific moment to overtake me and I will never find my way out of it. I am still shell-shocked with loss. It has been eight months.

Doctors have long recognized that stress can trigger illnesses. Dr. Richard Rahe, an expert on stress-related illness, developed a test to rate events that can cause stress. The higher your score, the greater risk of stress-related illness. The Rahe Test is also used to determine disease susceptibility. A score of 150 or less means you have a 37% chance of becoming seriously ill. Between 150 to 300, risk jumps to 51%. Over 300 and there is an 80% chance of serious illness in the next two years.

The death of a child is the single biggest stressor on the list. My score was 559. That in itself is stressful. Plus, due to pre-existing conditions, current health insurance guidelines deem many parts of my body (other than accidents) un-insurable. You know, I think I will just go back to bed.

Papers

Today I go through a mountain of papers. Why do I never throw anything away? One filing cabinet is filled with medical records, insurance forms; and correspondence between myself, and doctors, and the aforementioned insurance companies. The files start with Colby's upper respiratory infections and strep, and move to asthma (age 3) and to his sulfa allergy. That happened when he was five. Colby was prescribed a sulfa drug for strep and became partially paralyzed from the waist down. That was a little scary. Fortunately the effects only lasted about five days.

Then we move to depression (age 8), anxiety and behavior difficulties in school (age 10), the diagnosis of dysgraphia, a learning difference that affects writing, math calculation, organization and knot tying (age 11). At 12 there were panic attacks and at 15, anorexia (yes, boys get that, too). There was also mood disorder at 15 and that's when the long-term hospital stays began. A week here, ten days there, a month, four months. From 17 to 18 he rallied some, was on regular meds, had good medical care. Then the diagnosis of schizophrenia and the cancellation of not just his insurance policy, but the closing of the entire division of that insurance company.

Now I see the applications for new insurance and all the rejection letters. There are a ton of them, one from every major insurance carrier in the state, and they all say variations of the same thing. "Due to pre-existing conditions . . ." "Because of extensive hospital stays . . ." "Considering the mental instability . . ." "Because of the . . ."

After that I find receipts where I paid out of pocket for what I could. The amount of money spent is staggering. But it wasn't enough. I could not afford the more expensive testing they wanted to do, the hospital stays, and because of this Colby's mental state deteriorated. I couldn't get him to go to the dentist, to walk into the doctor's office. If I had known then what the future held I would have sold my house, lived in the truck, done anything. Anything . . .

I keep some of the papers, throw most of them away. The papers fill a large trash can and clean out the majority of the filing cabinet.  I refill the space with Colby's autopsy report, findings from the attorney who looked into his death, and information from his celebration of life. The drawer is, once again, full.

Statistics

As many of you know, my son Colby had several mental illnesses and passed from a drug overdose. So many people focus on the drug issue and yes, it was a big factor. But what most people do not realize is that a good percentage of drug users also have either a diagnosed or an undiagnosed mental illness such as depression, bi-polarism, panic disorder, etc. Here are a few interesting statistics from a presentation by Don McVinney, MSSW, M.Phil., ACSW, C-CATODSW, CASAC at a recent Harm Reduction Psychotherapy and the Treatment of Dual Disorders Northern California -Kaiser Permanente Conference:

37% of alcohol abusers and 53% of drug users also have at least one serious mental illness

Of all people diagnosed with a mental illness, 29% abuse either alcohol or drugs

As many as 50% of the mentally ill population are reported to have a substantial substance abuse problem

Axis I Disorders: (mood, anxiety, psychotic disorders) are 4 times more prevalent among alcoholics than non-alcoholics

Mood Disorders alone are two times more prevalent among alcoholics

Axis II Personality Disorders: (paranoia, schizophrenia, antisocial, etc,) are diagnosed in 65% of opiate addicts

Colby had diagnoses of depression, anxiety, panic disorder, paranoia, and schizophrenia. Yes, he died of a heroin overdose. But, so many people do not consider mental illness as a reason for drug use. Not all drug users are mentally ill, but you can see by the statistics that a good number of them are. Mental illness has such a stigma. Would people think differently of someone if, rather than a drug overdose, they had passed from a heart illness, or a liver illness? Sadly, I think they would. The difference is that a heart ailment or a liver ailment usually does not cause people to behave differently. A mental ailment does.

I mention this in the hopes that those of you who have loved ones who have a mental illness will keep a closer eye on them. I mention this in the hopes that those of you who are medical professionals will consider that the patient who presents as a drug user is using because he or she is mentally ill. And, I hope those of you who work in health insurance will consider that many, not all, but many, of the people who are either mentally ill or addicted can be helped if you will only offer them health care coverage. Give them a year, rather than 28 days, to recover in the knowledge that many of these people can be (and want to be) productive menbers of society. 

People who are recovering from cancer or from heart surgery typically have more than 28 days to recover. So please offer that same courtesy to those who are addicted and mentally ill.