I stay busy. Too busy. Intentionally busy. Necessarily busy. I stay up late creating more and more work so I do not have that few minutes of down time between putting my head on the pillow and sleep. Those are dangerous few minutes. Those are the minutes where the tears are most likely to come, where the anxiety is most likely to rise. Where the panic begins. So I stay busy.
Of course problems arise, eventually, because no one can keep up a pace like that forever. My body betrays me in its protest. Exhaustion, aches, pains, lack of focus ensue. I must slow down. I must. It is hard. So hard.
In those few minutes between pillow time and sleep, minutes that stretch longer and longer the less exhausted I am, I vow to return to my mantra: "What would Colby want?" How would he like me to live the rest of my life? What would he want me to do? Where would Colby like me to place my focus? If Colby could come back and live through me, what would be important to him?
I know exhaustion is not one of the things he would wish for me. Nor would he wish me pain or sadness. What he would wish me is a life filled with creativity, horses, writing, and helping others. And down time, relaxation, time to enjoy life's little pleasures. That is a goal for me. It is no where near a reality. I have to learn to sit quietly without panicking inside, without despair overtaking my entire being, without the empty ache that has become a black hole inside me.
I sit for one minute a day. Quietly. Sometimes. Hoping I can soon learn to be comfortable with two minutes. Or, three. Maybe. Someday.
Showing posts with label grieving parents. Show all posts
Showing posts with label grieving parents. Show all posts
Saturday, December 18, 2010
Wednesday, August 11, 2010
Events
I frequently get the comment, "But you always used to . . .." You can then fill in the blank: Go to the movies, attend business receptions, frequent favorite restaurants. The list is actually quite long. Many things I did regularly before Colby passed away I no longer do and there are several reasons for that.
One is that since Colby passed I have developed, not a sensory processing disorder, but something similar to that. Lots of sights and sounds, lots of people milling about, snatches of many different conversations, all overwhelm me. I can't think, can't breathe, can't focus. It is all too much. This apparently, while not common, is not unusual when someone is struck with devastating grief. It can last for years.
Another reason is that it takes me longer to do the things I do every day. I am not sure why that is but it takes more focus, more energy, to get my daily tasks done. The result is I am continually behind and when I catch up, I am physically and mentally exhausted.
When I decline an invitation I do hope the person extending it does not feel I am ejecting them or their event. That is not my intention. It is not how I feel. I recently read a great article by another grieving parent on CNN.com. I hope you'll check it out. The author is very eloquent in his grief, even though, for him, eleven years have passed. Grief is definitely a journey, but right now, today, I am not sure there is a destination.
One is that since Colby passed I have developed, not a sensory processing disorder, but something similar to that. Lots of sights and sounds, lots of people milling about, snatches of many different conversations, all overwhelm me. I can't think, can't breathe, can't focus. It is all too much. This apparently, while not common, is not unusual when someone is struck with devastating grief. It can last for years.
Another reason is that it takes me longer to do the things I do every day. I am not sure why that is but it takes more focus, more energy, to get my daily tasks done. The result is I am continually behind and when I catch up, I am physically and mentally exhausted.
When I decline an invitation I do hope the person extending it does not feel I am ejecting them or their event. That is not my intention. It is not how I feel. I recently read a great article by another grieving parent on CNN.com. I hope you'll check it out. The author is very eloquent in his grief, even though, for him, eleven years have passed. Grief is definitely a journey, but right now, today, I am not sure there is a destination.
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Thursday, July 29, 2010
Time
Someone asked me a few days ago if I could go back in time, what was the year and day I would go back to that would have changed the course of Colby's life. It is an interesting question on many levels and I have given that hypothetical concept a lot of thought with no real conclusions. On one hand there were many factors that contributed to Colby's passing and nothing would have changed the fact that he had a genetic mental illness. If I had somehow tried harder earlier on to get him better health care, if I had given 1001 percent rather than 1000 percent, the outcome could have been different, or it could have remained the same.
Then there is the idea that interfering with Colby's life plan could upset the balance of the universe. Most are familiar with the idea of the butterfly effect. The theory is that a butterfly could potentially beat its wings on one side of the earth and cause a hurricane on the other side of the globe. It is basic cause and effect. If I traveled back in time to change the details of Colby's life, how significantly would that change the balance of the universe? Because Colby passed away, I believe several others did not. Many other people have told me they took notice of Colby's death and made changes so their lives would not end up the same way. What if Colby lived and they did not?
Then there is the thought of "what is supposed to be, is." Colby often said when he was a young child in elementary school that he would not live long enough to marry, have children, or turn thirty. Was his life lived just as it was supposed to? Or could it have been altered so he lived a long and productive life without negatively impacting the course of anyone else's life?
Of course, we'll never know. The question was put to me, I believe, precisely for that reason. There was not one defining moment that took Colby away. It was many moments over many years. And, it may well have been his destiny. Right now, today, I have to believe that what Colby instinctively knew as a child was right. The details might have differed, but the end result could probably have been the same. This hypothetical thinking will not bring him back, but it does help me put some things into context. The one think I clearly know is that I miss Colby more than words can ever begin to express.
Then there is the idea that interfering with Colby's life plan could upset the balance of the universe. Most are familiar with the idea of the butterfly effect. The theory is that a butterfly could potentially beat its wings on one side of the earth and cause a hurricane on the other side of the globe. It is basic cause and effect. If I traveled back in time to change the details of Colby's life, how significantly would that change the balance of the universe? Because Colby passed away, I believe several others did not. Many other people have told me they took notice of Colby's death and made changes so their lives would not end up the same way. What if Colby lived and they did not?
Then there is the thought of "what is supposed to be, is." Colby often said when he was a young child in elementary school that he would not live long enough to marry, have children, or turn thirty. Was his life lived just as it was supposed to? Or could it have been altered so he lived a long and productive life without negatively impacting the course of anyone else's life?
Of course, we'll never know. The question was put to me, I believe, precisely for that reason. There was not one defining moment that took Colby away. It was many moments over many years. And, it may well have been his destiny. Right now, today, I have to believe that what Colby instinctively knew as a child was right. The details might have differed, but the end result could probably have been the same. This hypothetical thinking will not bring him back, but it does help me put some things into context. The one think I clearly know is that I miss Colby more than words can ever begin to express.
Friday, July 9, 2010
Fourth
The Fourth of July was hard. These holidays either cause me great anxiety before the day and then are a non-event, or smack me flat from behind. The Fourth of July smacked me good.
I have many good memories of Colby on July Fourth. When Colby was three he and my Mom did the polka for hours before and during the fireworks. They had a wonderful time.
There was the year Colby was about six, when the 4th fell on a Sunday. Tennessee celebrated the Fourth that year on the third and Colby participated with his t-ball team in a parade and then won the t-ball all star championship. Then we flew to Minnesota and celebrated again the next day. By the fifth, we were really tired!
When Colby was about ten, we took our dog, Sundance, to a Fourth of July parade in Minnesota and laughed for years at the face Sundance made when the bagpipes came by. Poor Sundance, that was one of the few life experiences he had that he did not fully enjoy.
Then there were many really hot Fourths that we spent in the lake at my mom's, the years we had picnics, or went to a Twins baseball game, or went to a movie. Now it is so hard to deal with the fact that those years are gone. They are in my past, our past. I will never again share the Fourth or July, or any other holiday with my son. Life has turned into a really, really bad dream. But it is a dream I must live with and learn to make the best of. And, somehow, I will.
This year Mom and I went to the horse races and visited with her friends. Then, later, I sat on the dock with my dog, Abby, and watched as more than a dozen people set off fireworks across the lake. It was a nice time, but I so wished Colby was there to share it.
I have many good memories of Colby on July Fourth. When Colby was three he and my Mom did the polka for hours before and during the fireworks. They had a wonderful time.
There was the year Colby was about six, when the 4th fell on a Sunday. Tennessee celebrated the Fourth that year on the third and Colby participated with his t-ball team in a parade and then won the t-ball all star championship. Then we flew to Minnesota and celebrated again the next day. By the fifth, we were really tired!
When Colby was about ten, we took our dog, Sundance, to a Fourth of July parade in Minnesota and laughed for years at the face Sundance made when the bagpipes came by. Poor Sundance, that was one of the few life experiences he had that he did not fully enjoy.
Then there were many really hot Fourths that we spent in the lake at my mom's, the years we had picnics, or went to a Twins baseball game, or went to a movie. Now it is so hard to deal with the fact that those years are gone. They are in my past, our past. I will never again share the Fourth or July, or any other holiday with my son. Life has turned into a really, really bad dream. But it is a dream I must live with and learn to make the best of. And, somehow, I will.
This year Mom and I went to the horse races and visited with her friends. Then, later, I sat on the dock with my dog, Abby, and watched as more than a dozen people set off fireworks across the lake. It was a nice time, but I so wished Colby was there to share it.
Sunday, May 30, 2010
Writings
I try to pinpoint what I miss most about Colby. It is everything. Absolutely everything. But one of many specific things I miss is conversation with him. Colby was a wonderful conversationalist. I miss that. I miss talking to him. I miss hearing his thoughts, his viewpoints, his ideas. In the absence of speech, I have bits and pieces of his writing. Colby was not a writer like I am. Instead, he was a poet, a lyricist, a songwriter. But his writings are a glimpse into his inner soul, for he only wrote about what truly mattered to him.
Instead of using one notebook, Colby had the habit of writing down lines for poems, thoughts, and songs on pieces of scrap paper, or a page or two of many notebooks. Over the past months I have found a number of these bits of writing. I have seen many of them before, but some are new to me. The writings remind me who Colby was at his core, and they keep his thoughts and beliefs fresh in my mind. For example:
Even if I make a mil
I’ll still buy my clothes at Goodwill
Those simple words remind me of Colby’s dedication to recycling, of using something completely and not throwing it away if it still had some life, or in this case some wear, left in it. Colby felt we use too many of our natural resources and do not value enough what the Earth provides. In that, I believe he was right.
Society is in rapid decay
With the crime rate soaring
People are running wild
Greed, power, food additives
A giant corporation
Controls every aspect of
Society from war to entertainment
To organ transplants
Everything is polluted
Life has never been cheaper
Like the lines above, much of Colby’s writing was about unfairness, injustice, and problems in our society. Colby was about valuing human life, finding meaning in our days, and living a life filled with natural products. Someday I will compile his thoughts, his written words. We can all find something of value in them, some thing to think about. But for now I will continue to search for and save them, and revel in each new find.
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Monday, May 24, 2010
Pity
Since Colby passed I do not attend many public events. This is for many reasons. A big one is that a lot of people moving around, along with several conversations going on at once, is still hard for my brain to process. I am overwhelmed with all the sensory input and become very anxious. This is a good sign that I am still reeling from Colby's passing. I am doing better, but have a long way to go. Someone in one of my support groups said it well in that grieving parents never "get over" or "get past" the death of their child, they just learn how to cope with it. I am still learning.
But another reason I do not attend events is that I do not want to see the pity on people's faces when they are confronted with me. People do not know what to do with me now that I am a grieving parent. People feel they cannot talk about kids or family or holidays or memories or the future because I no longer have any of that and it will upset me, so there is nothing left to talk about. I am, it seems, a great conversation stopper.
I do not want anyone's pity. I do not want to be treated like a fragile individual, even though in many ways that is exactly what I am. If a conversation bothers me, and yes, sometimes some conversations do, I will find something else to do, someone else to talk to. This is my problem, not everyone else's. My feelings are still raw, my emotions are still on a huge roller coaster. These are my issues to work through and pity from others serves no purpose.
Someday I will be able to handle the moving people and the varied conversations. It may not be today or tomorrow or even six months from now. But someday I will. Not treating me with pity will help speed this along.
But another reason I do not attend events is that I do not want to see the pity on people's faces when they are confronted with me. People do not know what to do with me now that I am a grieving parent. People feel they cannot talk about kids or family or holidays or memories or the future because I no longer have any of that and it will upset me, so there is nothing left to talk about. I am, it seems, a great conversation stopper.
I do not want anyone's pity. I do not want to be treated like a fragile individual, even though in many ways that is exactly what I am. If a conversation bothers me, and yes, sometimes some conversations do, I will find something else to do, someone else to talk to. This is my problem, not everyone else's. My feelings are still raw, my emotions are still on a huge roller coaster. These are my issues to work through and pity from others serves no purpose.
Someday I will be able to handle the moving people and the varied conversations. It may not be today or tomorrow or even six months from now. But someday I will. Not treating me with pity will help speed this along.
Sunday, May 16, 2010
Depression
There is a difference between grief and depression. Grief is the normal process of reacting to loss and can include anger, guilt, sadness, anxiety, despair, and other problems. Depression interferes with the ability to work, sleep, eat, and enjoy once-pleasurable activities.
Those who are grieving can also be depressed, and those who are depressed can be grieving, although that is not always the case. But, the line is fine. I know that since Colby passed I waver on both sides of the line. My grief is all encompassing and based on medical information and other parents who have lost a child, I know it is not likely to ever go away. Over time it may soften, but now, on some days, the grief is so heavy I know there is more going on. On those days, depression beckons.
Colby was depressed for much of his life and began seeing a counselor for grief and depression when he was eight. His grief was due to the loss of his beloved dog, Dexter, who died of old age. After a time his grief went away. The depression did not. Colby's depression sometimes lifted, but even when it didn't most days he was able to smile over his pain. I admired him for that, because he tried so hard to not let his depression interfere with the lives of those around him. For years we tried various treatments. For him, nothing worked. For both of us, that was frustrating and sad.
While I grieve for Colby, there is also grief for other losses in my life. Just about everyone my age has experienced multiple losses and for me they are all tied up together in a big tangled knot that I fear I will never unravel. One counselor said the reason my compounded grief and loss has not spun me into depression is because it has prepared me for the years I have ahead, alone, without family. The counselor likened me to a warrior. That may all be true, but the last thing I feel like is a warrior, and the last thing I planned for my life was to spend the last half of it without family, even though that is the way things turned out.
I'd give anything if my grief was not a reality. If Colby's medical team had gotten a handle on his depression when he was eight or ten or even twelve years old, then maybe he would still be here, I would not be grieving and would still have a family to celebrate future milestones and holidays with. Or, maybe, the outcome would still be the same. One thing is for sure, there are no guarantees. That's why each of us should live life to it's fullest and enjoy what we can today, for neither grief or depression can change the past or the future.
Those who are grieving can also be depressed, and those who are depressed can be grieving, although that is not always the case. But, the line is fine. I know that since Colby passed I waver on both sides of the line. My grief is all encompassing and based on medical information and other parents who have lost a child, I know it is not likely to ever go away. Over time it may soften, but now, on some days, the grief is so heavy I know there is more going on. On those days, depression beckons.
Colby was depressed for much of his life and began seeing a counselor for grief and depression when he was eight. His grief was due to the loss of his beloved dog, Dexter, who died of old age. After a time his grief went away. The depression did not. Colby's depression sometimes lifted, but even when it didn't most days he was able to smile over his pain. I admired him for that, because he tried so hard to not let his depression interfere with the lives of those around him. For years we tried various treatments. For him, nothing worked. For both of us, that was frustrating and sad.
While I grieve for Colby, there is also grief for other losses in my life. Just about everyone my age has experienced multiple losses and for me they are all tied up together in a big tangled knot that I fear I will never unravel. One counselor said the reason my compounded grief and loss has not spun me into depression is because it has prepared me for the years I have ahead, alone, without family. The counselor likened me to a warrior. That may all be true, but the last thing I feel like is a warrior, and the last thing I planned for my life was to spend the last half of it without family, even though that is the way things turned out.
I'd give anything if my grief was not a reality. If Colby's medical team had gotten a handle on his depression when he was eight or ten or even twelve years old, then maybe he would still be here, I would not be grieving and would still have a family to celebrate future milestones and holidays with. Or, maybe, the outcome would still be the same. One thing is for sure, there are no guarantees. That's why each of us should live life to it's fullest and enjoy what we can today, for neither grief or depression can change the past or the future.
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Thursday, May 13, 2010
Changes
Having a child die changes a parent in ways too countless to mention. I am not the same person I was before Colby passed and am still trying to find out who the "new me" is. One change is that I am more drawn to poetry than I was before. I have no idea why. Maybe it is that people send me poems I relate closely to, or that in my counseling sessions I find poets and poetry that become personal to me.
The following poem hits close to home because more than nine months after Colby passed many people are surprised that I am still grieving. They do not understand that most parents who lose children grieve for the rest of their lives. Life for them and for me will never be the same as it was "before," no matter how much we want it to be.
They Think I'm Fine and Over it
By Lyndie Sorenson © 2008
They think I'm fine and over it
Accepted that you died
But I live life with all this pain
And countless tears I've cried
I am forced to live with endless pain
That others can't accept
They think I'm fine and over it
Or that I'll soon forget
I want to scream from rooftops
Or silently just cry
I never will be over it
My God my child died!
It makes no sense to argue
My energy is low
So when they think I'm over it
I simply tell them No
I've become what they have wanted
A turtle in it's shell
Just keep my thought within myself
And never ever tell
I mask my life to others
To myself as well
For living every day on Earth
Is surely more like Hell
Simply put I won't get over it
Not better...stronger... fine
It is only that I've had no choice...
To live this life of mine
In loving memory of Joey and his heavenly buddies
The following poem hits close to home because more than nine months after Colby passed many people are surprised that I am still grieving. They do not understand that most parents who lose children grieve for the rest of their lives. Life for them and for me will never be the same as it was "before," no matter how much we want it to be.
They Think I'm Fine and Over it
By Lyndie Sorenson © 2008
They think I'm fine and over it
Accepted that you died
But I live life with all this pain
And countless tears I've cried
I am forced to live with endless pain
That others can't accept
They think I'm fine and over it
Or that I'll soon forget
I want to scream from rooftops
Or silently just cry
I never will be over it
My God my child died!
It makes no sense to argue
My energy is low
So when they think I'm over it
I simply tell them No
I've become what they have wanted
A turtle in it's shell
Just keep my thought within myself
And never ever tell
I mask my life to others
To myself as well
For living every day on Earth
Is surely more like Hell
Simply put I won't get over it
Not better...stronger... fine
It is only that I've had no choice...
To live this life of mine
In loving memory of Joey and his heavenly buddies
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Wednesday, May 12, 2010
Corners
I am being propelled very slowly down a long hallway. I am walking, but there is also an unseen force that keeps me walking. I am unable to stop. There are white linoleum tiles on the floor with yellow speckles, and cream colored walls. Every so often there is a brown, wooden door with a silver door handle, but each time I slow to open the door, I find it locked. Fluorescent lights brighten the hallway and overall, it is quite light. Behind me is a corner. There is another corner ahead of me. Sometimes when I look at the corner ahead is it a short distance away. Other times it is quite far.
I am afraid of the corner ahead of me. I have a lot of anxiety about it and whenever I think about rounding that corner I begin to tremble. I am not sure what is around the corner, but I believe it is something bad. Something terrible. I feel sick to my stomach but when I turn around to try to go back, I realize that around the corner I just came from is the worst thing that could ever happen to me. Whatever is around the next corner might be bad, but it cannot be as bad as the last corner.
Even though I now know the next corner will not be as bad as the last, I wonder if I am up for it. The last corner has damaged me. Badly. I am not whole. I am not strong. Even though the next corner will not be as bad as the last I am not convinced I will survive it.
Someone comes toward me. I cannot tell if the person is male or female, even when he/she slows to pass me. We do not speak, but I am given the idea that what is around the next corner might not be bad. That possibility still exists, but there is also a possibility that around the next corner is something quite pleasant. Something nice.
I find that concept hard to grasp, to believe. I am in a place where only bad things happen to me. How can something good be next? My anxiety grows but as I look at the next corner I see that it is now, again, quite far away. Whatever is around the corner, I will have time to prepare for it. But, I wonder how I can brace myself for both the good and the bad? My anxiety grows as I am slowly propelled toward the next corner, the next challenge of my life. I wake up, but am not sure I was dreaming.
I am afraid of the corner ahead of me. I have a lot of anxiety about it and whenever I think about rounding that corner I begin to tremble. I am not sure what is around the corner, but I believe it is something bad. Something terrible. I feel sick to my stomach but when I turn around to try to go back, I realize that around the corner I just came from is the worst thing that could ever happen to me. Whatever is around the next corner might be bad, but it cannot be as bad as the last corner.
Even though I now know the next corner will not be as bad as the last, I wonder if I am up for it. The last corner has damaged me. Badly. I am not whole. I am not strong. Even though the next corner will not be as bad as the last I am not convinced I will survive it.
Someone comes toward me. I cannot tell if the person is male or female, even when he/she slows to pass me. We do not speak, but I am given the idea that what is around the next corner might not be bad. That possibility still exists, but there is also a possibility that around the next corner is something quite pleasant. Something nice.
I find that concept hard to grasp, to believe. I am in a place where only bad things happen to me. How can something good be next? My anxiety grows but as I look at the next corner I see that it is now, again, quite far away. Whatever is around the corner, I will have time to prepare for it. But, I wonder how I can brace myself for both the good and the bad? My anxiety grows as I am slowly propelled toward the next corner, the next challenge of my life. I wake up, but am not sure I was dreaming.
Monday, May 10, 2010
Cookies
Nashville is cleaning up after our horrendous flood of last week. My friend and neighbor has made cookies, brownies, fudge, and bread to take to the flood victims in our area. Over the course of several days she graciously allows me to accompany her, and we drive up and down one devastated street after the other distributing her goodies to volunteers and victims alike. We hear one tragic story, and then another, and I realize yet again that we each walk our own versions of hell. I am not the only one suffering. I am not the only one who is going through challenging times. I am not the only one who has lost a child. Other people have unrecoverable losses, too.
As the days progress the piles of refuse in front of people's homes grow ever larger. Some piles completely obscure the house behind it. This is all these people have. Everything they own is in a ruined pile of stenchy slop in front of their house.
But as I look closer, as the horror of the miles of trash grow more distinct, I see the individuality, rather than the generic. There is a tall, narrow set of wire shelves. Over there are two dining room chairs that might be salvageable. There is a metal picture frame that is not too badly damaged. Across the street I see a set of slimy glass vases that look unbroken. Colby would have loved this.
I miss Colby every second of every day but even more so now, here, because Colby would have loved these piles of flooded trash. I can see him walking the streets, talking with the home owners and volunteers, pitching in to help pull a dresser through a door, and directing a car through a particularly narrow spot on the road. With the combination of helping others and finding free stuff that might could, maybe, someday, be cleaned and re-used, Colby would have been in his element.
As someone in my online support group recently wrote, we grieving parents miss seeing our kids grow and develop through the natural stages of life. Colby would have loved to open his own thrift store. I will never get to see him do that. I will never get to see him help these flood victims or turn twenty-five, have kids or grow old. But worst of all, Colby will never get to experience these things either. Not that he would have enjoyed the pain and suffering the flood victims are enduring, but he would have loved the aftermath, the helping, the process of rebuilding. And he so would have loved all the "stuff." Even if it was covered in flood slime.
As the days progress the piles of refuse in front of people's homes grow ever larger. Some piles completely obscure the house behind it. This is all these people have. Everything they own is in a ruined pile of stenchy slop in front of their house.
But as I look closer, as the horror of the miles of trash grow more distinct, I see the individuality, rather than the generic. There is a tall, narrow set of wire shelves. Over there are two dining room chairs that might be salvageable. There is a metal picture frame that is not too badly damaged. Across the street I see a set of slimy glass vases that look unbroken. Colby would have loved this.
I miss Colby every second of every day but even more so now, here, because Colby would have loved these piles of flooded trash. I can see him walking the streets, talking with the home owners and volunteers, pitching in to help pull a dresser through a door, and directing a car through a particularly narrow spot on the road. With the combination of helping others and finding free stuff that might could, maybe, someday, be cleaned and re-used, Colby would have been in his element.
As someone in my online support group recently wrote, we grieving parents miss seeing our kids grow and develop through the natural stages of life. Colby would have loved to open his own thrift store. I will never get to see him do that. I will never get to see him help these flood victims or turn twenty-five, have kids or grow old. But worst of all, Colby will never get to experience these things either. Not that he would have enjoyed the pain and suffering the flood victims are enduring, but he would have loved the aftermath, the helping, the process of rebuilding. And he so would have loved all the "stuff." Even if it was covered in flood slime.
Thursday, April 29, 2010
Relief
I wake up today and it is the first day in the more than nine months that Colby has passed that I have not felt completely overwhelmed. This is the first day I feel as if I can breathe, that I have some mental clarity. This is not to say that I did not cry several times today. I did. And it's not to say that I am always capable of making decisions about day-to-day things. I'm not. But this is the first day that I feel those things could maybe be a possibility at some point in the future.
I have been so mentally and physically tired working 16 hours a day 7 days a week just to keep up with my regular work load and the sorting of Colby's things. Part of this is because I got about a month behind in my work during the time Colby passed, and also because I now work about 25 percent slower than I used to. My brain just cannot think as fast as it did before. It takes me much longer to make daily decisions such as what to wear, what to eat, how to organize my day. I have to consciously remember to do household chores and run errands, take care of myself. Some days I do better than others. Many days I do not do very well at all.
But today I feel almost relaxed. It's as if the vice that has such a tight grip on my heart, on all my internal organs, has loosened just a fraction of an inch. I feel quieter internally, more able to relax, although I would not say that I am anything near what anyone would consider relaxed. These are interesting feelings for me. I can't remember the last time I felt like I could breathe, that internally I was not running a thousand miles an hour inside myself. It feels good.
I don't believe this is a permanent state for me. I believe, expect, I will slip back into the tight, jittery, overload before I can emerge again for a slightly longer time. But that I can find my way out, even for a peek, is good. Now if I can get the swirling, sick feeling that I've been punched in the stomach, and the fog-like mush in my brain that makes me feel that I am slightly concussed to go away. That would be good, too.
I have been so mentally and physically tired working 16 hours a day 7 days a week just to keep up with my regular work load and the sorting of Colby's things. Part of this is because I got about a month behind in my work during the time Colby passed, and also because I now work about 25 percent slower than I used to. My brain just cannot think as fast as it did before. It takes me much longer to make daily decisions such as what to wear, what to eat, how to organize my day. I have to consciously remember to do household chores and run errands, take care of myself. Some days I do better than others. Many days I do not do very well at all.
But today I feel almost relaxed. It's as if the vice that has such a tight grip on my heart, on all my internal organs, has loosened just a fraction of an inch. I feel quieter internally, more able to relax, although I would not say that I am anything near what anyone would consider relaxed. These are interesting feelings for me. I can't remember the last time I felt like I could breathe, that internally I was not running a thousand miles an hour inside myself. It feels good.
I don't believe this is a permanent state for me. I believe, expect, I will slip back into the tight, jittery, overload before I can emerge again for a slightly longer time. But that I can find my way out, even for a peek, is good. Now if I can get the swirling, sick feeling that I've been punched in the stomach, and the fog-like mush in my brain that makes me feel that I am slightly concussed to go away. That would be good, too.
Tuesday, April 20, 2010
Suicide
A friend who was very kind to me after Colby passed has taken his own life. It happened days ago, but I just today heard the news. I am devastated. I ache for his survivors. I did not know him or his family extremely well, but he was a kind person, he was kind to me in a time and place when he did not have to be, and we just do not have enough of those people in our world.
I do not know the details of what happened and I do not have to know. Anyone who takes his or her own life has troubles that feel to them so overwhelming that suicide seems the only choice. Sadly, my friend is not alone. According to the American Suicide Prevention Network, roughly 33,000 Americans die by suicide each year. That is one suicide every sixteen minutes, eighty-nine suicides a day. There are more than 800,000 suicide attempts in our country every year, and 24 percent of the general population has considered suicide at some time in his/her life. Those are high numbers.
But most, if not all, suicides can be prevented. The American Suicide Prevention Network also states that more than 60 percent of adolescents and 90 percent of adults who die by suicide have depression or another diagnosable mental or substance abuse disorder. According to several nationally representative studies, in any given year, about 5 to 7 percent of adults have a serious mental illness.
It is my belief that mental illness is the most overlooked issue in our health care system today. People are dying when they do not have to. My son was one of those people. Now I add a friend, a kind friend, to the list. So let's get over the stigma that depression, bi-polar disorder, panic disorder, anxiety, and all the other mental illnesses bring. Let's find a way to treat everyone who is mentally ill and keep our families whole. Let's stop the need for mind-numbing, overwhelming, never-ending grief.
Rest in peace, my friend. I will never forget your caring kindness.
I do not know the details of what happened and I do not have to know. Anyone who takes his or her own life has troubles that feel to them so overwhelming that suicide seems the only choice. Sadly, my friend is not alone. According to the American Suicide Prevention Network, roughly 33,000 Americans die by suicide each year. That is one suicide every sixteen minutes, eighty-nine suicides a day. There are more than 800,000 suicide attempts in our country every year, and 24 percent of the general population has considered suicide at some time in his/her life. Those are high numbers.
But most, if not all, suicides can be prevented. The American Suicide Prevention Network also states that more than 60 percent of adolescents and 90 percent of adults who die by suicide have depression or another diagnosable mental or substance abuse disorder. According to several nationally representative studies, in any given year, about 5 to 7 percent of adults have a serious mental illness.
It is my belief that mental illness is the most overlooked issue in our health care system today. People are dying when they do not have to. My son was one of those people. Now I add a friend, a kind friend, to the list. So let's get over the stigma that depression, bi-polar disorder, panic disorder, anxiety, and all the other mental illnesses bring. Let's find a way to treat everyone who is mentally ill and keep our families whole. Let's stop the need for mind-numbing, overwhelming, never-ending grief.
Rest in peace, my friend. I will never forget your caring kindness.
Labels:
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Mother's Day
I have been stressing about Mother's Day. This will be my first without Colby and I wondered to several people today what I should do to recognize the day. I asked for suggestions on how to get through it, because even though other holidays have been hard, I believe this will be the hardest one yet. Mother's Day. I can't tell you how shocked I was when someone actually said they didn't know why I was spending any effort worrying about it because, after all, I was no longer a mother. This was said kindly and earnestly, with no ill will, but still, it shattered me, even though they meant no harm.
I will always be Colby's mom. To deny that denies Colby, and he was far too kind and caring, intelligent and talented, a person to disrespect in such a way. Colby was and is and always will be my son. Without getting too deep into religion, philosophy or theology, I believe there is life after life here on Earth. Colby was my son, is my son, now and forever, and I am his mom.
People ask why I am not yet ready to return to a more public life, why I turn down invitations to parties, events, dinners with friends. This is exactly why. I never know when some well meaning person will say something that rocks my still very shaky world. And with every push, every teeter, I come closer to falling over an edge and I don't know how far the bottom is. Maybe I have already fallen over and am free falling into a bottomless abyss. I'd like to think not, but days like this, comments like the one I received today, make me wonder.
Someday I hope I can better handle such situations. Today, now, all I can do is cry.
I will always be Colby's mom. To deny that denies Colby, and he was far too kind and caring, intelligent and talented, a person to disrespect in such a way. Colby was and is and always will be my son. Without getting too deep into religion, philosophy or theology, I believe there is life after life here on Earth. Colby was my son, is my son, now and forever, and I am his mom.
People ask why I am not yet ready to return to a more public life, why I turn down invitations to parties, events, dinners with friends. This is exactly why. I never know when some well meaning person will say something that rocks my still very shaky world. And with every push, every teeter, I come closer to falling over an edge and I don't know how far the bottom is. Maybe I have already fallen over and am free falling into a bottomless abyss. I'd like to think not, but days like this, comments like the one I received today, make me wonder.
Someday I hope I can better handle such situations. Today, now, all I can do is cry.
Friday, April 16, 2010
Tremors
Colby with Abby (left) and Mom's dog, Rocky, (right)
Tremors. Little tremors shake up my carefully constructed world. Cracks spread around my life and I cannot glue them back together. It doesn't matter, I am way beyond trying. The latest tremor is that my mom's two-year-old dog, Rocky, has melanoma. She loves that dog. He is her reason for living, partially because Colby and I gave him to her Christmas before last.
Normally I could handle such news. Put a positive face on it. I'd research canine melanoma, find treatments and therapies. Now all I can do is sit on the couch and shake. I can't think. I want to throw up. Just how does a two-year-old, hairy, dark-skinned dog get melanoma anyway?
Skin cancer runs in our family, so I guess Rocky comes by it naturally. My mother has it. I have had it. I may have it again. That is one of the many things my current insurance will not cover because it is a pre-existing condition. The screening and testing is several thousand dollars and I can't afford it. I can't afford the dog's surgery either, but will find some way to pay for it.
Most people do not think of financial considerations when they think of grieving parents. Even if, like me, a parent does not take time off from work, things are processed lower, not as much gets done in a day. For me, lower productivity means lower wages. I feel the pinch. It has been eight months and I am still not back up to speed. I may never be.
I have spoken to, emailed with, many grieving parents who cannot work, even years after their children have passed. There is no focus, no organization in our brains. Simple things are forgotten. Mistakes are made. Many others, though, like me, try. We have no other option. I have work to do. Now. Today. It must be done, yet all I can do is hug my own dog, and cry.
Friday, April 9, 2010
Progress
I often wonder if I am making any progress in my grief. I wake up every morning shell shocked anew that my son is no longer here. The emptiness washes over me in waves. It still hurts. Badly. Sometimes I cannot breathe. Sometimes all I can do is cry. It has been more than eight months. How can I possibly get through the rest of my life like this?
A counselor suggests I not look at progress on a day-to-day level, but bi-annually. Am I doing better than I was six months ago? I think about that for a while. Here's what I come up with:
1. I am able to better care for myself now than six months ago. I eat and sleep more regularly. I remember to shower. I have gotten my hair cut (once).
2. The sick feeling, the knot, in the middle of my stomach is still there, but it is less intense. I do not feel 24/7 that I am going to vomit.
3. I can sometimes (but not always) tolerate being in a group of people without feeling completely disoriented and overwhelmed.
4. I still cry every day, but I cry less hard and less often than I did six months ago. And, I am sometimes able to talk about Colby without crying.
5. I have fewer meltdowns. Rather than several times a day, I now have them several times a week.
6. I am more ready now to let go of some of Colby's "stuff" than I was a few months ago.
7. My future alone in the world still terrifies me, but I am more able to focus and function on specific day-to-day activities, and less on my scary, unknown future.
I realize that while grief is often circular, rather than linear, I am making progress. I am not nearly where I want to be. It might turn out that I will never be where I want to be, but compared to six months ago I am making positive progress. If I continue in this direction, life six months from now has the possibility to be (somewhat) better than it is today.
I have not yet met or spoken to a grieving parent who has not had to learn to live with a "new normal." Everyone grieves differently and each of us has to find our way along this path ourselves. Even husbands and wives walk different paths here. I do not know if a parent who has lost a child ever comes to the end of this path, if this journey is ever over until we. too, pass on. But I can now see what while my journey here on Earth is forever changed, that I will have to endure more then enjoy for some time to come, that I will survive this––at least for as long as God planned for me to.
A counselor suggests I not look at progress on a day-to-day level, but bi-annually. Am I doing better than I was six months ago? I think about that for a while. Here's what I come up with:
1. I am able to better care for myself now than six months ago. I eat and sleep more regularly. I remember to shower. I have gotten my hair cut (once).
2. The sick feeling, the knot, in the middle of my stomach is still there, but it is less intense. I do not feel 24/7 that I am going to vomit.
3. I can sometimes (but not always) tolerate being in a group of people without feeling completely disoriented and overwhelmed.
4. I still cry every day, but I cry less hard and less often than I did six months ago. And, I am sometimes able to talk about Colby without crying.
5. I have fewer meltdowns. Rather than several times a day, I now have them several times a week.
6. I am more ready now to let go of some of Colby's "stuff" than I was a few months ago.
7. My future alone in the world still terrifies me, but I am more able to focus and function on specific day-to-day activities, and less on my scary, unknown future.
I realize that while grief is often circular, rather than linear, I am making progress. I am not nearly where I want to be. It might turn out that I will never be where I want to be, but compared to six months ago I am making positive progress. If I continue in this direction, life six months from now has the possibility to be (somewhat) better than it is today.
I have not yet met or spoken to a grieving parent who has not had to learn to live with a "new normal." Everyone grieves differently and each of us has to find our way along this path ourselves. Even husbands and wives walk different paths here. I do not know if a parent who has lost a child ever comes to the end of this path, if this journey is ever over until we. too, pass on. But I can now see what while my journey here on Earth is forever changed, that I will have to endure more then enjoy for some time to come, that I will survive this––at least for as long as God planned for me to.
Labels:
circular grief,
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grieving parents,
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Lisa Wysocky,
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sadness
Monday, March 22, 2010
Car
Colby's car has been sitting on my back patio for over a year. It doesn't run. Colby had forgotten to put oil in it and the engine is bad. I also cannot find the keys to it. Not sure I ever had them. There are are still piles and piles of his stuff in his room and in the basement. It is possible the keys are there. Somewhere.
The car has become a fixture on the patio. The dog sits under it when it is cold and wet outside and the neighbor's cat sits on top of it when it is sunny. Still, it accomplishes no other purpose than that. I need to get rid of it. Colby liked Pull-A-Part, a place where you can walk through rows of junked cars and pull parts from them (for a small fee) or sometimes get things left inside the cars, such as CDs and clothes, and you can get those for free. The car, I think, should go there.
I call AAA, but towing to a junk yard is not part of their emergency road service. So I call other tow services and am shocked at the prices. I spend half a day doing this, then frustrated, throw up my hands. I try to do with Colby's things as he would have wanted me to, but this is not working out with the car and Pull-A-Part. I throw up my hands and ask Colby, out loud, what I should do with the car.
An hour later I get an email from a friend of Colby's who asks if I still have the car. He offers to buy it so he can restore it. He has the knowledge to do so, but I will not let him purchase the car. Instead, I give it to him. I see how pleased he is with the car and I am very happy about it, too. We both believe that this is what Colby wanted.
The car is now gone, awaiting repairs from Colby's friend. The dog has found a new spot under a patio chair and the neighbor's cat sits on top.
The car has become a fixture on the patio. The dog sits under it when it is cold and wet outside and the neighbor's cat sits on top of it when it is sunny. Still, it accomplishes no other purpose than that. I need to get rid of it. Colby liked Pull-A-Part, a place where you can walk through rows of junked cars and pull parts from them (for a small fee) or sometimes get things left inside the cars, such as CDs and clothes, and you can get those for free. The car, I think, should go there.
I call AAA, but towing to a junk yard is not part of their emergency road service. So I call other tow services and am shocked at the prices. I spend half a day doing this, then frustrated, throw up my hands. I try to do with Colby's things as he would have wanted me to, but this is not working out with the car and Pull-A-Part. I throw up my hands and ask Colby, out loud, what I should do with the car.
An hour later I get an email from a friend of Colby's who asks if I still have the car. He offers to buy it so he can restore it. He has the knowledge to do so, but I will not let him purchase the car. Instead, I give it to him. I see how pleased he is with the car and I am very happy about it, too. We both believe that this is what Colby wanted.
The car is now gone, awaiting repairs from Colby's friend. The dog has found a new spot under a patio chair and the neighbor's cat sits on top.
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Thursday, March 18, 2010
Easter
Ugg. Today I go grocery shopping. I just put the last item into my cart and round a corner. There smack in front of me is a display of Easter candy. My heart stops, my stomach sinks to my knees and I begin to cry. This will be the first Easter in 25 years that I have not made an Easter basket for Colby.
Each year I went to special lengths to create a basket for him that was a mix of candy, toys and a special surprise. I put a lot of thought into it and always tried to out-do the basket from the year before. When Colby became a teen, he began making a basket for me. Of course we had to hide the baskets from each other. It was fun on Easter morning to try to find our basket, and hope that the dog or cat had not gotten to it first!
Some of Colby's more memorable hiding places were behind the toilet in the spare bathroom, in the mailbox, under a bucket in the basement, and in the clothes dryer. Now, staring at the display, I realize I will never make my son another Easter basket, and I will never receive another from him.
Easter has suddenly become another day that I dread, just like Thanksgiving, Christmas, New Year's, Mother's Day, my birthday, his birthday, and a host of other days I wish would just get get wiped off the face of the Earth so I didn't have to deal with them. Another day I have to avoid in weeks leading up to it because the cutesy ads and decorations are a harsh reminder that Colby is gone. Another day that other people get to enjoy with their family and I get to sit in a corner and cry.
I realize I can't face going through the checkout line. I leave my groceries in the cart in the middle of the aisle and sit in the truck until the shaking has stopped enough so I can drive home. I hate Easter.
Each year I went to special lengths to create a basket for him that was a mix of candy, toys and a special surprise. I put a lot of thought into it and always tried to out-do the basket from the year before. When Colby became a teen, he began making a basket for me. Of course we had to hide the baskets from each other. It was fun on Easter morning to try to find our basket, and hope that the dog or cat had not gotten to it first!
Some of Colby's more memorable hiding places were behind the toilet in the spare bathroom, in the mailbox, under a bucket in the basement, and in the clothes dryer. Now, staring at the display, I realize I will never make my son another Easter basket, and I will never receive another from him.
Easter has suddenly become another day that I dread, just like Thanksgiving, Christmas, New Year's, Mother's Day, my birthday, his birthday, and a host of other days I wish would just get get wiped off the face of the Earth so I didn't have to deal with them. Another day I have to avoid in weeks leading up to it because the cutesy ads and decorations are a harsh reminder that Colby is gone. Another day that other people get to enjoy with their family and I get to sit in a corner and cry.
I realize I can't face going through the checkout line. I leave my groceries in the cart in the middle of the aisle and sit in the truck until the shaking has stopped enough so I can drive home. I hate Easter.
Sunday, March 14, 2010
Absence
I have been absent from this blog for a few days. Thank you to all who have checked in. I have needed your love and support. It has been a very rough week.
Grieving parents who are ahead of me on this journey tell me that at some point around the first anniversary of their child's death, the shock begins to wear off and that's when the grieving process really begins. Even though it has only been a little over seven months, I believe I am at that stage. Colby's loss has been hitting me so much harder than ever before, on a much deeper level. For several days all I could do was sit curled up in a corner and cry. That is not like me. Before, most days I could function on some level. Recently, I have not been able to do that.
But the good news is that today, and for the past few days, the grief has been a little softer, a little easier. And when the harder grief returns hopefully I will be more prepared. I have conquered Round 1, and am ready for Round 2.
To those who have recently asked, "Aren't you over that yet?" I say NO. I do not believe parents "get over" the loss of a child. Nor do any of my counselors or parents in my local or online support group. We learn to live with it. We learn to function with a new normal. Losing a child is completely different than losing a parent or a spouse or a sibling. I do not discount the impact those losses have on people. They are huge. But the parent/child bond is different, and I hope none of you ever have to experience this kind of loss.
So for those who have asked me to events, to lunch, to parties, to receptions. Thank you. I appreciate you thinking about me, for wanting to include me. But I am not yet ready. It is still too much. I have this carefully constructed life that allows me to function (most days) but if I step out of my routine, then my world once again falls apart. Someday I will be ready. I hope that someday is soon. But if it is not, I know that eventually, it will arrive.
Grieving parents who are ahead of me on this journey tell me that at some point around the first anniversary of their child's death, the shock begins to wear off and that's when the grieving process really begins. Even though it has only been a little over seven months, I believe I am at that stage. Colby's loss has been hitting me so much harder than ever before, on a much deeper level. For several days all I could do was sit curled up in a corner and cry. That is not like me. Before, most days I could function on some level. Recently, I have not been able to do that.
But the good news is that today, and for the past few days, the grief has been a little softer, a little easier. And when the harder grief returns hopefully I will be more prepared. I have conquered Round 1, and am ready for Round 2.
To those who have recently asked, "Aren't you over that yet?" I say NO. I do not believe parents "get over" the loss of a child. Nor do any of my counselors or parents in my local or online support group. We learn to live with it. We learn to function with a new normal. Losing a child is completely different than losing a parent or a spouse or a sibling. I do not discount the impact those losses have on people. They are huge. But the parent/child bond is different, and I hope none of you ever have to experience this kind of loss.
So for those who have asked me to events, to lunch, to parties, to receptions. Thank you. I appreciate you thinking about me, for wanting to include me. But I am not yet ready. It is still too much. I have this carefully constructed life that allows me to function (most days) but if I step out of my routine, then my world once again falls apart. Someday I will be ready. I hope that someday is soon. But if it is not, I know that eventually, it will arrive.
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