Christmas

Today I remember Christmases past. I remember the year Colby was fifteen months old and kicked Santa Claus. The year he was a little more than two and was afraid to sled down my mom's slightly sloping driveway. We made snow angels instead. I remember the year he was three and got the choo choo train and the drum he had been asking for all year, every day, since the Christmas he was two.

By Colby's fourth Christmas he and my mom and I were sledding down the bigger hill in her yard like pros. That was also the year he begged to go to the dinosaur exhibit at the Minnesota Science Museum, then screamed when he saw the first dinosaur and refused to go in. By age eight Colby had graduated to sledding the hills at the local golf course and by age ten he was beginning to snowboard. We built snow forts and snow men (and snow women and dogs) and had a number of snowball fights.

In between the snow, there were trips to other museums, art exhibits, plays, concerts, restaurants, and lots and lots of movies. And board games. Colby always won at Michigan Rummy. And there were always projects Mom needed done. Colby fixed the gate to the downstairs when he was about twelve and it still works. He re-hung closet doors, helped clean out those same closets, and learned to drive on snow.

When Colby was maybe nine, he and Mom and I made cardboard swords and decorated them glitter, beads, and bits of sparkly fabric from my old skating costumes. He made cookies with the neighbor behind us and we went for winter walks in the neighboring woods. He and I checked out the neighbor's houses from the front by walking on the frozen lake, being sure to stay close to the shoreline. We snuggled during blizzards, went to church, and drove around in the evenings and looked at Christmas lights.

I am so grateful for these wonderful memories. Christmas will never be the same without Colby, without family. I struggle with this new reality, in finding my place in holiday doings and the family gatherings of others. For now I ignore them. Colby's loss is still too fresh, too painful. Someday, maybe, the holidays will mean something to me once again. In the meantime I am blessed to have had wonderful Christmases past.

Snowflakes

I sit here and watch it snow and think life is like a series of snowflakes. Every day life gives us challenges and each one of those challenges can be considered the equivalent of a snowflake. Individually, a snowflake weighs almost nothing and individually, most challenges can be met. But when the snowflakes and challenges build up, then life becomes extremely hard.

Colby had many challenges in his life. Like all of us, some were of his own doing, many others were just what life dealt him. Over time, the weight of all those many snowflakes built up, first blanketing Colby in them, then suffocating him with their weight. At the end, Colby was buried under a huge drift of snow.

My job now is to find a way to rid myself of my own deep layer of snowflakes. If I melt them, they compact and turn to ice, which is even heavier than the snow. If I pull globs of snow away from me, it leaves huge gaping raw spots that may not heal. Best to brush the snow off a little at a time, I think, and try to dodge any new flakes headed my way. How to do that, I am not yet sure, but every day I will brush and dodge until the weight of my individual snowflakes is once again manageable.

Letter

RECENT DEAR ABBY LETTER

PARENTS WHO LOST A DAUGHTER ARE NOW IN A DIFFERENT PLACE

DEAR ABBY:

My beautiful 20-year-old daughter was killed in a car accident. I am writing this not only for myself, but for all parents who have lost a child, and to all of the wonderful people who asked, "What can I do for you?"

At the time there wasn't much anyone could do to help, but after two years I have an answer: Accept me for who I am now.

When Rachel came into my life, it changed me profoundly. Losing her did the same. Her father and I work hard to honor her memory, but we will never "get over it" to the degree of being who we were before. I am different now. In some ways -- I think -- better. I am kinder, more patient, more appreciative of small things, but I am not as outgoing nor as quick to laugh.

I know people mean well when they encourage me to get on with my life, but this is my life.

My priorities have changed. My expectations of what my future will hold have changed. Please extend to me again the offer of "anything I can do" and, please, accept me as I am now.
 
-- DIFFERENT NOW IN RIVERVIEW, FLA.

DEAR DIFFERENT NOW:

Please accept my profound sympathy for the tragic loss of your daughter.

I hope that your letter will help anyone who doesn't understand that the death of a child is the most devastating loss parents can suffer and that the experience is life-changing. They may get beyond it, but they never get "over" it.

To expect that they would is unrealistic, because it's a wound that may become less visible but never goes away.

Stars

I dream of Colby. It has been a long time since I dream of him so vividly. Months. Many months. In the dream Colby tells me that when he was here on Earth the brain in his body was wired differently than other people's brains. He saw the world through different eyes. I explain to him about schizophrenia and he says yes, that was his brain. He wants people to know that he was very smart. He is afraid people will remember him as dumb when in fact his brain was light years ahead of most of ours. He just could not cope with the differences in his brain, which were hereditary. I tell him that I was aware of Colby's intelligence, as was everyone who knew him. He is relieved.

Colby then says he likes the blue star. I have to think about that, about what he means. Then it dawns on me that the logo for Colby's Army, the nonprofit organization founded to finish the work here on Earth that Colby could not, is in the shape of a blue star. I had not considered it a star before. It was simply a shape that Colby drew over and over again when he was small. But it is. It is a star. And it is blue.

Then Colby says he loved the tree his friends and I planted in his memory. He tells me he was there that day, that he was the one who put the idea of the tree planting in my mind. Colby wants to know if we intentionally got a tree related to the goddess Artemis. After I wake up I look that up and find that Artemis is affiliated with the cypress tree. The tree we planted for Colby was a Leyland Cypress.

Colby also shares with me that my life theme is to be a peace bringer, that I am to help people look at the world through different glasses, to open their minds to ideas that are different that what they might currently perceive. He says he will help me in this and that he is here with me often.

Then Colby tells me he is curious about his death. He says he does not remember much about it other than he just fell asleep and there were beams of light and angels around him. When the angels asked him to go with them, he went. He is very happy where he is now. He says he can see the big picture and is pleased about what will come in the future for people on Earth.

Before the dream ends Colby becomes very excited and jumps up and down. He tells me I will write a book with someone who is very famous and the book will do very well. He won't tell me who the famous person is even though he knows. He wants it to be a surprise and says it will be a big one.

Colby has to go, he says. It takes a lot of his energy to visit me in this way. But he wants me to know that he loves me and is proud of me. We hug and I feel his presence intensely. When I wake up I have a sense of peace . . . and a purpose.

Rivers

A counselor shares a river metaphor with me. We are all floating down the river of life. Some of us are floating in the luxury of a huge yacht or the pleasure of a big party boat. Some of us are on a barge or a pontoon, others are in speed boats, or flowing down the river in a sailboat. I am in a kayak.

This is actually good news. For the first year or so after Colby's passing I was swimming, some days I was just treading water to stay afloat. Now I have a kayak. While my journey right now is very much a solo journey, I have the luxury of some direction. I can wield my paddle to direct the kayak toward the shoreline, where I can stop and rest for as long as I need to. I can float alongside a cabin cruiser or a barge filled with friends if I choose. In my kayak, I can sometimes see the rapids ahead and choose the easiest path through them. Then again, sometimes I come upon the rapids in the darkest of nights and am fully at their mercy.

Throughout our lives we can switch boats. While I grew up on a pontoon, for many years Colby and I were in a rowboat. I manned the oars of that boat alone for many years, but as Colby got older, he was able to spell me often. When he passed away, our rowboat sunk and I was left adrift.

I have a goal. I want to trade my kayak for a canoe. Canoes are easier to handle, drier, often slower, and it is easier to get your bearings in them. Plus, they are not so physically exhausting to manage. In my canoe, I can arrange my thoughts, my feelings, my goals, my plans. It is too cramped in the kayak to do that. Someday soon, I hope to find my canoe. In the meantime, I will continue to paddle down the river and learn to portage around the waterfalls that are sure to lie ahead.

Busy

I stay busy. Too busy. Intentionally busy. Necessarily busy. I stay up late creating more and more work so I do not have that few minutes of down time between putting my head on the pillow and sleep. Those are dangerous few minutes. Those are the minutes where the tears are most likely to come, where the anxiety is most likely to rise. Where the panic begins. So I stay busy.

Of course problems arise, eventually, because no one can keep up a pace like that forever. My body betrays me in its protest. Exhaustion, aches, pains, lack of focus ensue. I must slow down. I must. It is hard. So hard.

In those few minutes between pillow time and sleep, minutes that stretch longer and longer the less exhausted I am, I vow to return to my mantra: "What would Colby want?" How would he like me to live the rest of my life? What would he want me to do? Where would Colby like me to place my focus? If Colby could come back and live through me, what would be important to him?

I know exhaustion is not one of the things he would wish for me. Nor would he wish me pain or sadness. What he would wish me is a life filled with creativity, horses, writing, and helping others. And down time, relaxation, time to enjoy life's little pleasures. That is a goal for me. It is no where near a reality. I have to learn to sit quietly without panicking inside, without  despair overtaking my entire being, without the empty ache that has become a black hole inside me.

I sit for one minute a day. Quietly. Sometimes. Hoping I can soon learn to be comfortable with two minutes. Or, three. Maybe. Someday.

Letters

Today I find a letter I wrote to Colby. It was a letter he never read, a letter I had never given him because I wrote it in case I passed away suddenly. It was to be my final words of encouragement to him, something for him to read after I passed on, never thinking that something that tragic would happen to either of us for decades. But just in case, years ago I tucked the letter into a corner of a drawer and in it I told Colby how much I loved him and that I would always watch over him. How, I think now, is that possible when Colby passed before me? How can I watch over him and care for him when he is no longer here?

Some might say that there is no need for me to do either of those things because Colby is now well cared for in heaven. I believe that is true, but as a grieving parent of an only child, my need to be a mom to my son didn't die along with him. That urge to care for him is still here. It is a unique position we grievers of only children are in. When our child passed, so did our role as a parent.

I find in addition to grieving for Colby, I grieve for my role as a mom. I grieve for the grandchildren I will never have. I grieve for the in-laws I will never meet, the weddings and birthdays and christenings and graduations I will never attend, and school plays I will never see. I grieve for what could have been, but will never be. I grieve for Colby, for my lost role as a mom, and for me.

The grief brings home to me that the loss of every person in its own way alters the course of the universe. There is all the love that will never be realized, the children who will never be born, the events that will never take place. It is very sad, all that loss. There is much to grieve for, and a lifetime of loss to contemplate.

Research

Exciting new research from The Children's Hospital of Philadelphia indicates a very close tie between ADHD, autism and schizophrenia. The tie-in has to do with similar mutations on chromosome 16. I have mentioned before that since Colby passed I have found numerous relatives on my side of the family who had schizophrenia and I fully believe there is a genetic component.

This new finding is another step forward in learning more about the human brain and mental illnesses, including schizophrenia. Someday, I hope, there will be definitive genetic markers that will help diagnose schizophrenia, as well as medications to better treat it.

For more information, follow this link to the article: http://psychcentral.com/news/2010/05/11/genetics-similar-for-adhd-autism-schizophrenia/13704.html

Scars

We all have scars. Some of us have very visible scars from accidents and others of us have internal scars from wounds incurred by life experiences. Colbby had a scar on his tongue that he got when he fell down when he was not yet two. I remember there was blood everywhere, but the ER doc I talked to assured me that tongues do bleed a lot and that it probably would be fine. And it was.

Another external scar Colby had was on his thumb. He was opening a can of dog food when he was about eight and ended up with a ton of stitches. The worst part of that incident was that it was right at the beginning of baseball season and he missed most of the games that year.

But, like a lot of us, Colby had many internal scars: the counselors who did not adequately diagnose him, the doctors who turned their professional backs, the teachers who not only didn't believe in him but actively and intentionally were unhelpful. And then there is me. I know I caused some of Colby's scars, just as all parents unintentionally disappoint their children from time to time.

Colby's internal scars were big and heavy and ugly and he couldn't carry them without help. Even though many of his friends and I tried, the devastating reality is that we could not get Colby the help he needed.

Like Colby, I too have scars. In addition to the usual accumulation of life scars, my biggest scar is that of a grieving parent. One surviving son of a parent in one of my support groups likened this kind of grief, this kind of scar, to a broken leg that didn't heal right. End result: you learn to live with the limp. That analogy is so accurate because I feel as if I am now limping through life. I will still end up at the same place at the end, but it will be a slower, more painful and difficult journey than it would be if Colby were still here.

Integration

Integration is a word I hear a lot in my grief sessions and from my therapy friends. In this context it means that grieving parents must learn to integrate their grief into their new lives without their children. With many other kinds of grief, the grief is short term and the person moves on. Not so with grieving parents. Their grief is for life.

This is not to say that the parent is stuck at the same level of grief or at the same point of their life. Instead, grief moves with you, becomes a part of you, is integrated into your life. Here, grief is a moving, fluid thing that becomes part of you.

The hard part of all of this for me, and probably for all parents, is to integrate something I do not want, something I never asked for. It's like being tied to a big, black, heavy ball and chain and having to lug it around . . . forever. The pain of carrying this big, heavy ball is so big, so deep, that at times it feels as if a series of Exacto knives are being twisted around my insides. Sometimes the pain is more bearable and then at the oddest moments I am doubled over in agony. That level of grief can last for days.

So many grieving parents have told me that it will get better over time and I do believe them. And, while my heavy ball will always be with me, over time I will also have integrated it well enough into my life that it seems lighter. It will become more manageable because I am more used to it. At least, that is what I hope for.

Birthday

Colby's 25th birthday is (would be) a week from today. I have found that if I become anxious in days leading up to a special event such as this I get through the day fairly well. If not, then I am a mess the entire day, and in the days that follow the big day. It's too early to tell which way this day will go. If I had a choice, I'd prefer the anxious days ahead of Colby's birthday. Not that there isn't anxiety in all my days now. There is, but "special days" make it worse. Then again, if I had a choice, I'd prefer to take Colby to the restaurant of his choice for dinner.

When Colby was a child, he had birthday parties at home where the kids would ride our horse, Snoqualmie. Or, we'd go to Chuck-E-Cheese, or play miniature golf. Colby was really into miniature golf there for a while. As he got older his interest in miniature golf spurred the idea that he could whack golf balls from our front yard, across the road and into the playground of the school yard beyond. I was terrified that he'd smash a ball into a car, or even worse, a driver, so I stopped him whenever I found him enjoying that particular activity. He never did hit anything, though . . . that I am aware of.

It is hard for me to imagine Colby at twenty-five, even though he was almost twenty-four when he passed. On his birthday it will have been fourteen months and five days since he's been gone. I often wonder how Colby would be different today than fourteen months ago? What would his latest interest be? What new topic would bring about passionate  conversation? While I miss everything about him, I miss our conversations the most. We spoke almost every day and he always said something that made me look at people or the world in a different way. I miss that and hate that with his passing I now look at the world through a thick, gray filter. I wish that gray-ish view was a choice. I wish I could alter it, but it is a permanent presence that, for now, is unchanging.

I will do something to honor Colby on his birthday. Maybe on his birth hour of 1:12 p.m. I am not yet sure what that will be, so I hope "some thing" will turn into a "specific thing" between now and then. I still think it is terribly sad that our world keeps parents here without their children. I wish I lived in a world where parents were always the ones to go first. I wish no parent had to continue on without his or her child.

Layers

It has been a month since I have written anything, probably a lifetime record for me. I have never not been able to write, so this has been a new experience. Thank you to all who have called or emailed to check on me. I appreciate you beyond words.

I have to admit, it has been a rough haul since the first anniversary of Colby's passing. There were so many thoughts and feelings and emotions swirling through my body and I couldn't grasp on to any of them. Some days I couldn't get out of bed. Some days I absolutely could not function.

Over time, what slowly began to emerge from that swirling mass was a visible layer of grief. Think of your body as a vibrant container of color. Maybe today your right knee is a bright blue and your head is a vivid yellow and your right arm is a brilliant orange. Every body part has a beautiful color and together all those colors make up you.

Now place a transparent layer of dark gray over each one of those colors. You can still see the yellow and blue and orange, but they are muted. This is the new you, more subdued, slower, heavier, grayer. The horror begins when you realize that this layer of gray will be with you forever. In years to come the gray may become lighter, it may become more transparent, but it will always be there. It is an entwined, integral part of who you are. Forever.

I hate the color gray.

Safety

We all want and need to feel that our world is safe, and I recently realized that I have not felt safe since Colby was born. Colby's lungs collapsed at birth and he had many upper respiratory issues as a young child. Even though I had a room monitor, several times I woke up to hear Colby gasping for air, struggling to breathe, turning blue. I don't believe I've slept deeply since then.

At three Colby was diagnosed with asthma, at age eight with depression, and on and on. There was always something, or several somethings, that made me believe that if I slept, deeply, something terrible would happen that I could have prevented, had I been awake. Turns out I could not prevent the worst thing that could ever possibly happen.

Close to twenty-five years of sleepless nights became a habit, and old habits die hard. I still don't sleep because I cannot find that sense of peace, of safety. I still wake up every hour and check the door to be sure it is locked. I check that the lights are tuned off. I check the floor to be sure a glass hasn't flown off the shelf by itself and broken, scattering bits of glass I might step on. This is not normal behavior. I know this even as I check, one more time.

This is not a scary, fearful feeling of being unsafe, rather it is the feeling that I left something important undone. It does not take a rocket scientist to figure out that because I could not save Colby that I am now overcompensating. This is yet another part of grief, another part of the process grieving parents experience. I am told my feelings, my behavior, are not unusual. Grief for parents who have lost a child is a lifelong process, and this is part of that process.

Now that I understand, I find if I talk to myself I can sometimes talk myself out of jumping up yet again to check something. I can calm my rising anxiety and ward off another frightening panic attack. And sometimes, I can reassure myself that my world is safe, even though it will never, ever, be right or whole again.

Bus

The big bus parked in front of my house looks like an aerodynamic whale in a black tuxedo. The bus pulsates and I feel the vibration of its energy. There are large wheels on the bus, almost cartoon-like wheels, but I know they are only for looks. This bus hovers and flies through the air, through space and time.

It is dark outside. The two people at my door are dressed in black business suits. One is a woman a few years younger than I am with dark red, shoulder-length hair. Her hairstyle is from the 1960s and her face is lined and severe. She is also slightly shorter and carries a walkie-talkie. The other person is a tall, thin, baby-faced man with dark curly hair who is probably in his thirties.

The two people and the bus are here for Colby. Colby is ready and waiting, and is eager to go. He has a duffle bag packed and gives me a hug and a kiss before he heads out the door. I try to grab him, to pull him back. I am frantic. Colby musn't leave! I know if he leaves he will not return. My fear and anxiety grow and the woman blocks the door as I try to run after Colby. She is surprisingly strong. "It's not your time," she says. I understand now that the two people are here not to escort Colby, but to keep me from following him.

Colby turns before he enters the gaping mouth of the whale bus. He waves. He is happy. "I'll check in on you," he says. Then he is gone. The two people and the bus disappear, and I am standing alone in my open front door, the night breeze swirling around my broken heart.

Events

I frequently get the comment, "But you always used to . . .." You can then fill in the blank: Go to the movies, attend business receptions, frequent favorite restaurants. The list is actually quite long. Many things I did regularly before Colby passed away I no longer do and there are several reasons for that.

One is that since Colby passed I have developed, not a sensory processing disorder, but something similar to that. Lots of sights and sounds, lots of people milling about, snatches of many different conversations, all overwhelm me. I can't think, can't breathe, can't focus. It is all too much. This apparently, while not common, is not unusual when someone is struck with devastating grief. It can last for years.

Another reason is that it takes me longer to do the things I do every day. I am not sure why that is but it takes more focus, more energy, to get my daily tasks done. The result is I am continually behind and when I catch up, I am physically and mentally exhausted.

When I decline an invitation I do hope the person extending it does not feel I am ejecting them or their event. That is not my intention. It is not how I feel. I recently read a great article by another grieving parent on CNN.com. I hope you'll check it out. The author is very eloquent in his grief, even though, for him, eleven years have passed. Grief is definitely a journey, but right now, today, I am not sure there is a destination.

Words

Music helps most people through hard times. For me it is, always has been, the beauty of words.


Grief grabs us by the throat and shatters our world into a million pieces.
Some days it numbs us to the bone and turns us into walking zombies.
Other days it pierces our hearts and forces a scream so loud it scares us into silence.
John Bowlby, M.D.

Your absence has gone through me
Like a thread through a needle
Everything I do is stitched with it’s color
W.S. Merwin

He had learned the worst lesson that life can teach––that it makes no sense.
And when that happens the happiness is never spontaneous again.
It is artificial and, even then, bought at the price of an obstinate estrangement
From oneself and one’s history . . . .
Stoically he suppresses his horror.
He learns to live behind a mask.
A lifetime experiment in endurance.
A performance over a ruin.
Philip Roth

There is no tragedy in life like the death of a child; things never get back to the way they were.
Dwight D. Eisenhower

Healing may not be so much about getting better, as about letting go of everything that isn’t you––all of the expectations, all of the beliefs––and becoming who you are.
Rachel Naomi Remen

Assimilation

From Colby's Notebook
Ain't it funny, how we serve money
Ain't it funny, how we die for our country
Ain't it funny, we were born a slave
I'm not laughing, I won't behave

Since Colby passed I sometimes think about getting in my truck and driving to the ends of the Earth so I can live in a cabin in the middle of nowhere. Since he passed, my brain does not function as it did before. There is too much input, too many sights and sounds for me to process. There is just too much of everything.

Oh, how I wish the world would stop for a year, of maybe two, so I could sit quietly and wait for my brain to catch up. I'd like to take time to learn to breathe again, to breathe without the catch in my chest that happens every time I breathe in, the catch that reminds me, every time, that Colby is gone. I want to learn how to wake up every morning without the horror of remembering that my son, my family, is gone. Forever. I want to learn how to go to sleep without crying and to eat without the food tasting like sawdust. I want to learn to live this new normal that is me without Colby, and in today's busy world, I find that very hard to do.

Time is a luxury in so many ways. I'd love the luxury of one more minute with Colby. I'd love the luxury of time to assimilate Colby's passing into my life and integrate it into what is now me. For this is a new me. I am no longer the person I before Colby passed away. I am not sure who this new me is. I need to familiarize myself with me, but, there is no time.

Isn't it interesting that the word familiarize is so close to the word family? I am my family now. And, as the first year without Colby is now history, I find myself moving into a new phase of understanding, of learning. I just wish the world would slow down and allow me the luxury, the time to catch up. Then maybe I could find a way to assimilate it all.

Time

Someone asked me a few days ago if I could go back in time, what was the year and day I would go back to that would have changed the course of Colby's life. It is an interesting question on many levels and I have given that hypothetical concept a lot of thought with no real conclusions. On one hand there were many factors that contributed to Colby's passing and nothing would have changed the fact that he had a genetic mental illness. If I had somehow tried harder earlier on to get him better health care, if I had given 1001 percent rather than 1000 percent, the outcome could have been different, or it could have remained the same.

Then there is the idea that interfering with Colby's life plan could upset the balance of the universe. Most are familiar with the idea of the butterfly effect. The theory is that a butterfly could potentially beat its wings on one side of the earth and cause a hurricane on the other side of the globe. It is basic cause and effect. If I traveled back in time to change the details of Colby's life, how significantly would that change the balance of the universe? Because Colby passed away, I believe several others did not. Many other people have told me they took notice of Colby's death and made changes so their lives would not end up the same way. What if Colby lived and they did not?

Then there is the thought of "what is supposed to be, is." Colby often said when he was a young child in elementary school that he would not live long enough to marry, have children, or turn thirty. Was his life lived just as it was supposed to? Or could it have been altered so he lived a long and productive life without negatively impacting the course of anyone else's life?

Of course, we'll never know. The question was put to me, I believe, precisely for that reason. There was not one defining moment that took Colby away. It was many moments over many years. And, it may well have been his destiny. Right now, today, I have to believe that what Colby instinctively knew as a child was right. The details might have differed, but the end result could probably have been the same. This hypothetical thinking will not bring him back, but it does help me put some things into context. The one think I clearly know is that I miss Colby more than words can ever begin to express.

Hope

It's been a year and a day since I found out my only child had passed away. I still look toward the door each evening, thinking he will be bounding through it any minute now. Sometimes I pick up the phone to call him, to tell him something he might find interesting or amusing, only to realize when I begin dialing that he is no longer here. Each instance of recognition is like learning of his death all over again.

A year is a milestone. As a society we celebrate birthdays, anniversarys, and holidays on an annual basis. As I think back with a year's worth of perspective to those terrible early days of shock and disbelief I realize now that they will never fully leave me. Those days will always be with me, as will Colby's absence. But his life will also be with me. The good times, the memories, will be there. I continue to be amazed at all the people he touched, the lives he changed for the better. Not a week goes by that someone lets me know Colby made a difference in their life. I am so proud of my son because I know it was often hard for him to stay positive when he was hurting inside so badly.

Two days ago, on the first anniversary of his passing, some of his friends and my friends planted a tree in Colby's honor and memory. It was a peaceful, communal effort in a quiet spot by a creek where Colby played as a child. After, everyone stayed to visit and catch up, and some placed personal mementos on the tree's branches. It was good to see everyone. Good to know Colby is still remembered. Good to know others cared about him, and his life. Good to know how much he was loved. Is loved.

Some friends, both his and mine, were not able to be there and while I missed their presence, I understand that grief is an intensely personal journey. This past year has taught me that I have no idea from one moment to the next what I will be feeling or thinking. Sometimes I might be up to facing a group of people, more often not. Those who were not there know where the tree is planted. Several have told me they have already visited it privately, as I will also do.

Many parents who are ahead of me in this process of grief tell me the second year is often worse than the first. This is because the shock has worn off and the finality of the tragic loss has set in. I don't see how anything can be worse than this past year, but time will tell. Today, I can see that I have progressed in my journey of grief. I have not come very far or very fast, but I have had movement. All I can hope for is that a year from now I can look back and see that I am further along the trail than I am now. That's all I can expect. Hope.

Should

In four days it will be one year since Colby passed. I haven't posted much in the past few weeks because I have such a swirl of emotion and thought and feeling that I can't begin to grasp onto any of it. What made sense to me six months ago no longer does, or at least it is less concrete than before. Now, half formed thoughts and feelings float through my brain and then disappear as soon as I try to define them.

I have spoken with a number of grieving parents about the first anniversary and just like the way they grieve, these parents honor this day in many different ways. There is no "should" or "should not" when it comes to this. There just is. In one way it is comforting to know that whatever I  feel or do is correct. On the other hand it is a bit scary not to have quantifiable bench marks to achieve.

Some parents tell me that at the one year mark they are still in denial. They tell themselves their son or daughter is on an extended vacation overseas or in jail or part of the witness protection program. Other parents keep themselves grounded by visiting their child's grave every day. These coping strategies are as individual as the parents themselves. My strategy is that I talk to Colby. I'd like to think he hears me, but if not, it helps me cope, helps me process this undefinable loss.

To honor Colby's first angelversary several of his friends, my friends, and I will plant a tree. Maybe this will be something we do every year. Maybe not. It's a way to honor Colby's life with a living, growing thing and with something that will give back to our environment. Colby would like this, I think. And maybe Colby will be with all of us four days from today. Maybe I'll tell myself that he will be. Or maybe not.

Fourth

The Fourth of July was hard. These holidays either cause me great anxiety before the day and then are a non-event, or smack me flat from behind. The Fourth of July smacked me good.

I have many good memories of Colby on July Fourth. When Colby was three he and my Mom did the polka for hours before and during the fireworks. They had a wonderful time.

There was the year Colby was about six, when the 4th fell on a Sunday. Tennessee celebrated the Fourth that year on the third and Colby participated with his t-ball team in a parade and then won the t-ball all star championship. Then we flew to Minnesota and celebrated again the next day. By the fifth, we were really tired!

When Colby was about ten, we took our dog, Sundance, to a Fourth of July parade in Minnesota and laughed for years at the face Sundance made when the bagpipes came by. Poor Sundance, that was one of the few life experiences he had that he did not fully enjoy.

Then there were many really hot Fourths that we spent in the lake at my mom's, the years we had picnics, or went to a Twins baseball game, or went to a movie. Now it is so hard to deal with the fact that those years are gone. They are in my past, our past. I will never again share the Fourth or July, or any other holiday with my son. Life has turned into a really, really bad dream. But it is a dream I must live with and learn to make the best of. And, somehow, I will.

This year Mom and I went to the horse races and visited with her friends. Then, later, I sat on the dock with my dog, Abby, and watched as more than a dozen people set off fireworks across the lake. It was a nice time, but I so wished Colby was there to share it.

Coffee

My mom and I are at a coffee shop. It is one of those trendy places with couches and easy chairs haphazardly draped over the floor. Recorded instrumental music plays softly in the background. Young women with dark, spiky hair and black aprons tied around their waists serve coffee and pastries. They wear brown short-sleeved button down tops and short black skirts to go with the black aprons. The walls are painted brown and the furniture is all varying shades of tan, brown, and a deep maroon. It could be a dark, drab place. But it is not. It is cozy, almost den-like. It is comfortable.

Mom and I place our beverage orders. And then we receive them. Then we wait. As usual, he is late. Then he arrives with a flurry of hugs and apologies. Colby looks good, looks happy. He is not as relaxed as when I have seen him before but this, he says, is because he is busy. Colby knows all the waitresses by name and they treat him as if they know him, as if they are his friends. He has lots of friends, they tell me.

Colby and I take our beverages out to a porch. It is the porch of an old farm house and there are a lot of tall leafy trees between us and the road in front of us. The porch and its accompanying railing is covered with peeling white paint. Colby sits on a chair facing me and I sit in the porch swing. It is hard for mom to get around so she stays inside. "They will let her know what I am doing these days," Colby says, meaning the waitresses.

Colby catches me up on his activities. He is busy with a variety of things and I am so caught up in drinking up the sight of him that I forget to listen. I tell Colby that I wish I could see him more often, that I wish he still lived here with us. He looks puzzled. He frowns that slight frown and his eyes look quizzical. "But I am always with you," he says. "I am always there."

Then Colby looks directly into my eyes and it is his gaze that I see when I wake up.

Ambulance

Today an ambulance pulls out of a medical clinic. The emergency vehicle is right in front of me and travels at normal speed. This is the same clinic where, when Colby was about nine, a doctor called an ambulance when Colby was having an asthma attack.

Then, Colby had been to see a doctor several times in a ten day period for an upper respiratory infection. It turned into strep even though he had been taking antibiotics and, as was typical whenever Colby got sick, his breathing deteriorated. I called his regular clinic and they were closed as it was a weekend. They suggested we try a walk-in clinic. We did and while there, Colby's breathing went from bad to worse.

After the examination the doctor stepped out of the room. A minute later we heard sirens and the doctor explained he had called an ambulance. The clinic was not equipped to treat Colby in his current state. This was certainly not our first trip to the hospital due to asthma, but it was the first time Colby had gone in an ambulance. I followed the vehicle, which was driving without sirens at normal speed, to Vanderbilt Hospital. Half way there the lights and sirens came on and my heart jumped into my throat. A block later the flashing and noise stopped and the driver later explained to me they were "playing" at Colby's request.

That trip resulted in a several day hospital stay and I think of that time now, as I follow this ambulance for a mile or so. I hope whoever is being transported will be okay. And I hope whoever is being transported is well enough to "play" with the lights and siren.

First Year

As I approach––as we all approach––the first anniversary of Colby's passing, a therapist suggested I compare Colby's first year on Earth with mine. It's an interesting concept and was quite an eye opener for me. I had never thought much about my first year. However, as my parents split around the time of my first birthday, I realized for the first time that there could have been a lot of fighting. I know the house we lived in was tiny. How much of the yelling was I able to hear, to process? As an only child, it would have been just my parents and me. I believe my dad traveled, so my mom was also probably often overwhelmed in caring for a newborn by herself. For better or worse I will never know how that all affected me, although I am sure it did. After my dad left my mom and I moved in with my grandmother. My mom lives in that house still today.

Colby's dad, on the other hand, left when Colby was just five weeks old. After that it was just Colby and me, and fortunately for me, other than continual resperatoy infections, Colby was a good baby and a good sleeper. When Colby was six weeks old I found a job. Despite my wanting to stay with Colby during the day we had to eat and have shelter and the only way that would happen was if I worked. So, I placed Colby in the daily care of a wonderful grandmotherly woman who had nine grown children of her own. There was only one other child there, a girl who was about six months older than Colby, so he had someone to play with and watch and learn from during the day. In the evenings he and I did "babycizes" (baby exercises), which were in vogue at the time. Colby had excellent athletic ability and hand/eye coordination throughout his life, so maybe some of those early exercises paid off! We also read in the evenings, as I imagine my mother read to me. Colby and I lived in a mobile home in the country and the home was probably a little larger than the one I lived in my first year.

So, my dad was around my first year, Colby's was not. I stayed at home during the day with my mom while Colby was in the home of an older caregiver. I was not around other babies while Colby had an older child to play with. I probably experienced some fighting. Colby and I led a quiet existence at home.

What this all means, I do not know, but I do know that I will think about it. I am sure most of us rarely, if ever, have tried to visualize what our first year was like. It is an important year that shapes us in many ways. Thinking about those first years has given me empathy for my mother, and also empathy for myself. It is not easy to care for a baby no matter what the circumstances, but I believe every mother does the best she can. I know I did, and then some.

Religion

From the time he was small Colby was interested in world religion and over the years he studied many different forms of worship. The bulk of his personal library was filled with books on Christianity, Hinduism, Buddism, the Jewish religion and others. I remember when he was about fourteen he was so excited to discover that all of the religions he studied had one thing in common: a rule that you should "do undo others as you would like others to do unto you."

Recent studies have shown that those with schizophrenia are often very interested in religion and a 2002 study found that 80 percent of people who are severely mentally ill in North America use religion as a way to better cope with their illness.

I am not sure whether Colby's interest in religion had anything to do with his mental illnesses. I do know that Colby found this prayer several years ago, and it often brought him peace. It is an old translation of "Our Father" from Aramaic to English, rather than from Aramaic to Greek to Latin and then English.

Our Father

O cosmic Birther of all radiance and vibration!
Soften the ground of our being and carve out a space
within us where your Presence can abide.

Fill us with your creativity so that we may be
empowered to bear the fruit of your mission.

Let each of our actions bear fruit in accordance with our desire.
Endow us with the wisdom to produce and share
what each being needs to grow and flourish.

Untie the tangled threads of destiny that bind us,
as we release others from the entanglement of past mistakes.

Do not let us be seduced by that which would divert us
from our true purpose, but illuminate
the opportunities of the present moment.

For you are the ground and the fruitful vision,
the birth, power and fulfillment,
as all is gathered and made whole once again.

Caring

I'm not sure when I stopped caring about, well, a lot of things. I only realized it when another grieving parent in a support group mentioned that she just didn't care about anything any more. The house was not clean? So what? She was late for an appointment? Big deal. I, too, find myself feeling the same way.


Not that I don't care, intensely, about other things. The oil spill, endangered species, my friends. But the fact that my tomato garden has weeds has no meaning for me anymore. My counselors say this lack of caring is another side of grief.

Studies at the University of Western Sydney in Australia show that the grief of parents after the loss of a child is more intense and prolonged than that of any other loss, and follow-up studies show that anxiety and depression may last four to nine years after the loss of a child. When a child dies suddenly, as Colby did, parental grief may become complicated by post traumatic stress reactions, so that the parent has to deal with the interplay of both trauma and grief. There is just not room in the human brain for all the thoughts, feelings, and emotion so some of them have to go. Like caring.

Maybe someday I will once again be bothered by weeds or the fact that I am late. Maybe I will once again care about the dust bunnies under the couch. Maybe someday I will wake up and realize that it no longer hurts to breathe and the hollowness that permeates my insides is gone. Maybe. Someday.

Movement

I have a new "yard guy." My mailman is new and the neighbors behind me have a new dog. Colby has not met either of these people, or the dog, and that is another reminder to me that life for those of us who are still here goes on. There is movement in the progression of life and that movement does not include Colby. That thought makes me incredibly sad.

Every day I am reminded that Colby is not here, at least not in physical form. I pass his favorite drinks at the supermarket and put several in the basket . . . and then take them back out. My cable provider requires me to install new converter boxes, something that is not one of my strengths when it comes to skill sets. Colby could have done it when he was four--and that is not an exaggeration. I, meanwhile, will most likely spend and entire frustrating day and still not get it right. I find (yet another) pair of his socks (in a box), wash them and begin to put them in his sock drawer. Then stop.

Counselors say that the mind of a grieving parent is overloaded similarly to that of survivors of post-traumatic stress syndrome. That's why we "forget" our child is no longer here, why we have trouble focusing or remembering to do things we've done every day of our lives. It's one of the many reasons why we eventually turn into different people than we were "before."

That change, or the evolution in our stages of grief, is another movement away from our beloved child. We must go on without them, yet every time we turn around their absence is a gaping hole in our lives. I greet the new yard man. Wave at the new postman and introduce Abby, my dog, Colby's and mine, to the new dog behind us. I do all of this in a wave of grief, for they are more reminders that Colby has really and truly moved on.

e e cummings

Colby liked the poet e e cummings, mostly, I believe, because cummings wrote many poems in lower case and with little, if any, punctuation. Colby hated punctuation. He felt it was limiting, and who is to say he was wrong? Words aren't always for the writer to convey. Sometimes they are for the reader to interpret.

Here's the beginning one of Colby's favorites:


why must itself up every of a park
why must itself up every of a park
anus stick some quote statue unquote to
prove that a hero equals any jerk
who was afraid to dare to answer "no"?

Here's a favorite of mine:

i carry your heart with me
i carry your heart with me
(i carry it in my heart)
i am never without it
(anywhere i go you go, my dear; and whatever is done
by only me is your doing, my darling)
i fear
no fate (for you are my fate, my sweet)
i want
no world (for beautiful you are my world, my true)
and it's you are whatever a moon has always meant
and whatever a sun will always sing is you

here is the deepest secret nobody knows
(here is the root of the root and the bud of the bud
and the sky of the sky of a tree called life; which grows
higher than the soul can hope or mind can hide)
and this is the wonder that's keeping the stars apart

i carry your heart (i carry it in my heart)

ee cummings

Snoqualmie

 Colby on his 4th birthday. Snoqualmie was 28.

Today would have been Snoqualmie's 49th birthday. Snoqualmie was the horse I had as a child, and then was Colby's horse when he was small. The bond I had with her and then that Colby had with her was amazing. I never had a moment of worry or doubt about Colby's safety if he was playing with Snoqualmie. He'd climb up her mane and ride her in through the pasture with no halter or bridle, just guiding her by pulling left or right on her mane.

Sometimes they'd amble along, a Civil War soldier and his horse coming home from battle, complete with cardboard guns and a military cap we found at a thrift store. Other times they'd gallop thrrough the field, a pirate ship and her captain escaping the enemy (which was sometimes our dog, Dexter, or less often, our cat Bootsie).

Colby never fell off. Snoqualmie would never have allowed it. If he got off balance, she shifted underneath him and gently slowed. She was quiet and patient with Colby, but she knew he was important to me and took good care of him.

Snoqualmie passed away when Colby was six and she was 31. She'd had a stroke a few days before and finally got down and could not get back up. One thing she loved to do was eat, so as I held her head in my lap in a field of trees as I waited for the vet, Colby went to the barn for the grain. For once she could have all she wanted. She licked handful after handful from Colby's little hand and when it was time, I sent Colby to the house. She is buried there, underneath the trees. Even after we moved away from that house, Colby and I visited her at least once a year.

Today I like to think that they are together, galloping off to new adventures in heaven. I had each of them with me for 23 years. First Snoqualmie, and then Colby. Each was my best friend and I miss both of them more than words can say. Happy Birthday, my Fat Girl.

People

Today I go to a busy annual event. There are several hundred people there. Most I have not seen for a year or more. I have stressed over this event for days. So much so that I get zero sleep the night before. It is work related. I have to go. Some people know that Colby passed, others won't. But they all know Colby, because for years he used to accompany me to this.

Just as I imagined, at the event I had two kinds of conversations. The first went something like this:

"I am so, so very sorry about Colby. You poor thing. How are you doing?"

"I'm fine. It's a bit of an emotional roller coaster, but I'm okay." This is my standard answer. People really do not want to know that I cry every morning when I wake up and every evening before I fall asleep. They don't want to know that Colby's absence still hurts with every breath I take and that it is a rare occasion when I can get in the truck and go from Point A to Point B without having to pull off the road because I am crying so hard.

"Really? Are you really okay?"

"Yes. It is very hard, but I am okay."

"Really?"

These people do not understand that I don't want to go into details in this very public setting. I try not to be rude as I turn to find something to busy myself with, or someone else to talk to. But the someone else invariably jumps into conversation number two:

"Hey! Hi! How are you? Long time no see? How's that boy of yours?"

"I'm sorry to say that Colby passed away last July."

"Ha, ha! No, how is he, really?"

"He passed away."

When they get what I am saying, it's a real conversation stopper. That's when they turn and try to busy themselves with something or find someone else to talk to. In either instance, conversation is awkward. I feel like I have the plague as the crowd parts every time I walk through it. Faces turn away. The few that don't are overly solicitous. "Oh, you poor, poor thing," they say as they pat me on the back.

And people wonder why I don't go out much anymore.

Better

Sorry for the lapse in posts and thank you all for emailing me. I am okay, just still very tired. Colby was always the one who could tell from the sound of my voice or the look on my face that I was not well. He saw and heard long before anyone else, including myself, that I was too tired, or coming down with something. Now, with Colby gone, without his eagle eye and keen ear, I find myself doing too much and not stopping to rest.

I feel as if I have not really rested in years. A week or so ago my symptoms had reached the scary stage and I knew I was either sick with something very serious or long past exhaustion. Fortunately, now that I have had a little rest, I believe it is the latter. I am just tired and it is a tiredness that won't go away with a good night's sleep--or even two night's sleep. This is a deep mental and physical and emotional exhaustion that will take much time and rest to overcome and I am taking steps to make that happen. Ten hours of down time every day rather than four, half of an over the counter sleep aid if I can't fall asleep, at least two days off a month.

I have not had a vacation in over thirty years and in past years I have only taken a few days off the entire year. It's not that I am a martyr or a glutton for punishment. It was a matter of survival, of managing my work load, Colby's troubles, and my mom's aging. But, Colby was always there to say, "Stop, you are getting sick." Without that touchstone in recent months I have pushed myself too far, for too long.

The good news is that I am now much more aware of what my body is telling me. I am now feeling better than I have in a long time, although I know I have a long way to go before I am where I need to be. I am fortunate that I am able to rest during the day when I need to. For the most part I can get my work done at any hour of the day or night. In that, at least, I am blessed.

Art

Every year for Mother’s Day Colby gave me something he created. It might have been a drawing, something he made from wood (such as a garden stool), or a poem. A few years ago Colby gave me the painting you see at the top of this post. In keeping with his belief about using everything and throwing nothing away that had any possible use, this painting is done on a piece of cardboard. For this painting he also used paint that was left over from other projects.

The reason I like this painting so much is not just because I think it is beautiful, it’s because the gold in the mountains is paint that was left over from the time we went to Bowie Park in Fairview and gathered pine cones that we tipped with gold and gave to friends as Christmas gifts. The red is from when Colby made a CD storage bin out of popsicle sticks for my mother and painted it. The cardboard is from boxes of books I had delivered for a book signing that Colby helped me stack, and the darker background is paint that was left over from the time Colby and I painted my toy box from when I was a child. The toy box was more recently his, and now resides in the spare bedroom as a bookshelf. Before it was my toy box, it was a storage chest during WWII when my mother was in the Marines.

This is just one of many paintings that Colby did. Most are abstracts and reflect the way he was feeling at the time he painted them. All make excellent use of color and design. Today as I clean out more “stuff” from his room I find his stacks of bare canvasses, his pains and his brushes. In addition to the traditional canvasses most artists use I find several blocks of wood, a small piece of corrugated metal, and two old skateboards—minus wheels. His brushes consist of a small assortment of the usual, plus a number of sponges, table knives, a toothbrush, and a few small scrub brushes. I am so deeply and heart-breakingly saddened that I will never see what work of art Colby planned to create with his collection of “stuff.” I know it would have been absolutely awesome.

Writings

I try to pinpoint what I miss most about Colby. It is everything. Absolutely everything. But one of many specific things I miss is conversation with him. Colby was a wonderful conversationalist. I miss that. I miss talking to him. I miss hearing his thoughts, his viewpoints, his ideas. In the absence of speech, I have bits and pieces of his writing. Colby was not a writer like I am. Instead, he was a poet, a lyricist, a songwriter. But his writings are a glimpse into his inner soul, for he only wrote about what truly mattered to him.

Instead of using one notebook, Colby had the habit of writing down lines for poems, thoughts, and songs on pieces of scrap paper, or a page or two of many notebooks. Over the past months I have found a number of these bits of writing. I have seen many of them before, but some are new to me. The writings remind me who Colby was at his core, and they keep his thoughts and beliefs fresh in my mind. For example:

Even if I make a mil

I’ll still buy my clothes at Goodwill

Those simple words remind me of Colby’s dedication to recycling, of using something completely and not throwing it away if it still had some life, or in this case some wear, left in it. Colby felt we use too many of our natural resources and do not value enough what the Earth provides. In that, I believe he was right.

Society is in rapid decay

With the crime rate soaring

People are running wild

Greed, power, food additives

A giant corporation

Controls every aspect of

Society from war to entertainment

To organ transplants

Everything is polluted

Life has never been cheaper

Like the lines above, much of Colby’s writing was about unfairness, injustice, and problems in our society. Colby was about valuing human life, finding meaning in our days, and living a life filled with natural products. Someday I will compile his thoughts, his written words. We can all find something of value in them, some thing to think about. But for now I will continue to search for and save them, and revel in each new find.

Tired

I am so tired. Granted, I had a busy week, but it is more than that. It is the tiredness of grief. I want to sleep for a month, or two, or maybe even for a year. This is not depression tiredness, but the exhaustion of my soul. I listen to counselors, to experts, to other parents who have lost a child, or in some cases, have lost children. One thing is common to them all: each believes there is no right or wrong way to grieve. We each have an individual path to follow and we have to do what is right for us.

My problem is that I don't know what that is. Do I give in to the exhaustion and sleep for a week? I have much to do and am already behind. Will I catch up if I am rested? Will the rest even restore my energy or will I forever stagnate in this exhaustion? Is this tiredness the normal tiredness of grief or is there something more going on? If I do rest, will I ever get back on track? Or, will I lose focus entirely and not be able to find the slippery traction of my path?

The thought of finding an answer to these questions is so mind boggling to me that I can't begin to sort it all out. I miss Colby so much. Every time I breathe, every time I turn around, everything I do. He should be here, yet he is not. Many grieving parents say the second year is worse than the first. The shock wears off and the "real" grieving begins. If that is true, how can I possibly put one foot in front of the other and finish this first year, much yet the second, and the third and the fourth? The only thing I know is that I have to. Somehow I have to because this is what my life is now, and I have no other choice than to continue on. Other grieving parents find a way. If they can do it, I can do it, too.

Pity

Since Colby passed I do not attend many public events. This is for many reasons. A big one is that a lot of people moving around, along with several conversations going on at once, is still hard for my brain to process. I am overwhelmed with all the sensory input and become very anxious. This is a good sign that I am still reeling from Colby's passing. I am doing better, but have a long way to go. Someone in one of my support groups said it well in that grieving parents never "get over" or "get past" the death of their child, they just learn how to cope with it. I am still learning.

But another reason I do not attend events is that I do not want to see the pity on people's faces when they are confronted with me. People do not know what to do with me now that I am a grieving parent. People feel they cannot talk about kids or family or holidays or memories or the future because I no longer have any of that and it will upset me, so there is nothing left to talk about. I am, it seems, a great conversation stopper.

I do not want anyone's pity. I do not want to be treated like a fragile individual, even though in many ways that is exactly what I am. If a conversation bothers me, and yes, sometimes some conversations do, I will find something else to do, someone else to talk to. This is my problem, not everyone else's. My feelings are still raw, my emotions are still on a huge roller coaster. These are my issues to work through and pity from others serves no purpose.

Someday I will be able to handle the moving people and the varied conversations. It may not be today or tomorrow or even six months from now. But someday I will. Not treating me with pity will help speed this along.

Caves

When Colby was six and seven we went with his cub scout group to stay overnight at Cumberland Caverns, a large cave system in Middle Tennessee. Each year we went, Colby was the youngest in the group and the route our guide took us on was quite ambitious. We scaled steep rock walls, crawled through long narrow tunnels, and jumped over wide crevasses––and Colby loved every minute of it. Colby kept up with the older boys (the eight and nine year olds) just fine and the experience gave him a life-long interest in caves.

In caving, he and I both learned that it is important to have three sources of light with you at all times. Because, when your light goes out there is a blackness like you have never experienced. It is an inky, thick, overwhelming darkness that seeps into your pores. It is not necessarily a terrifying blackness, but it certainly is a colorless void that I learned to respect.

Grief for a child is like the blackness of the caves. It is ever present and becomes part of you. It is a thick, fluid presence that never goes away. Sometimes it is a little less dark, a little less thick, but always, it is there. I wish I could express in words how profoundly Colby's passing has affected me, how completely the death of any child affects his or her parents, but I have not yet been able to wrap my brain around that. Perhaps I never will.

What I can say, however, is that I hope very much that anyone who has living parents who reads this will be careful with their lives. We humans take chances with our lives every time we step into the street, ride in a car, or take a pill. I want to say, yes, it can happen to you. You can be the one who is in a car accident. You can be the one who is in a house fire, or drown in a pool. I would not wish the pain of a child's death on my worst enemy, so please be careful with your lives. Please be aware of what is going on around you. Please think before you act. Please do not put another mom or dad through the darkness that so many of us grieving parents live with every day.

Depression

There is a difference between grief and depression. Grief is the normal process of reacting to loss and can include anger, guilt, sadness, anxiety, despair, and other problems. Depression interferes with the ability to work, sleep, eat, and enjoy once-pleasurable activities.

Those who are grieving can also be depressed, and those who are depressed can be grieving, although that is not always the case. But, the line is fine. I know that since Colby passed I waver on both sides of the line. My grief is all encompassing and based on medical information and other parents who have lost a child, I know it is not likely to ever go away. Over time it may soften, but now, on some days, the grief is so heavy I know there is more going on. On those days, depression beckons.

Colby was depressed for much of his life and began seeing a counselor for grief and depression when he was eight. His grief was due to the loss of his beloved dog, Dexter, who died of old age. After a time his grief went away. The depression did not. Colby's depression sometimes lifted, but even when it didn't most days he was able to smile over his pain. I admired him for that, because he tried so hard to not let his depression interfere with the lives of those around him. For years we tried various treatments. For him, nothing worked. For both of us, that was frustrating and sad.

While I grieve for Colby, there is also grief for other losses in my life. Just about everyone my age has experienced multiple losses and for me they are all tied up together in a big tangled knot that I fear I will never unravel. One counselor said the reason my compounded grief and loss has not spun me into  depression is because it has prepared me for the years I have ahead, alone, without family. The counselor likened me to a warrior. That may all be true, but the last thing I feel like is a warrior, and the last thing I planned for my life was to spend the last half of it without family, even though that is the way things turned out.

I'd give anything if my grief was not a reality. If Colby's medical team had gotten a handle on his depression when he was eight or ten or even twelve years old, then maybe he would still be here, I would not be grieving and would still have a family to celebrate future milestones and holidays with. Or, maybe, the outcome would still be the same. One thing is for sure, there are no guarantees. That's why each of us should live life to it's fullest and enjoy what we can today, for neither grief or depression can change the past or the future.

Changes

Having a child die changes a parent in ways too countless to mention. I am not the same person I was before Colby passed and am still trying to find out who the "new me" is. One change is that I am more drawn to poetry than I was before. I have no idea why. Maybe it is that people send me poems I relate closely to, or that in my counseling sessions I find poets and poetry that become personal to me.

The following poem hits close to home because more than nine months after Colby passed many people are surprised that I am still grieving. They do not understand that most parents who lose children grieve for the rest of their lives. Life for them and for me will never be the same as it was "before," no matter how much we want it to be.

They Think I'm Fine and Over it
By Lyndie Sorenson © 2008

They think I'm fine and over it
Accepted that you died
But I live life with all this pain
And countless tears I've cried

I am forced to live with endless pain
That others can't accept
They think I'm fine and over it
Or that I'll soon forget

I want to scream from rooftops
Or silently just cry
I never will be over it
My God my child died!

It makes no sense to argue
My energy is low
So when they think I'm over it
I simply tell them No

I've become what they have wanted
A turtle in it's shell
Just keep my thought within myself
And never ever tell

I mask my life to others
To myself as well
For living every day on Earth
Is surely more like Hell

Simply put I won't get over it
Not better...stronger... fine
It is only that I've had no choice...
To live this life of mine

In loving memory of Joey and his heavenly buddies

Corners

I am being propelled very slowly down a long hallway. I am walking, but there is also an unseen force that keeps me walking. I am unable to stop. There are white linoleum tiles on the floor with yellow speckles, and cream colored walls. Every so often there is a brown, wooden door with a silver door handle, but each time I slow to open the door, I find it locked. Fluorescent lights brighten the hallway and overall, it is quite light. Behind me is a corner. There is another corner ahead of me. Sometimes when I look at the corner ahead is it a short distance away. Other times it is quite far.

I am afraid of the corner ahead of me. I have a lot of anxiety about it and whenever I think about rounding that corner I begin to tremble. I am not sure what is around the corner, but I believe it is something bad. Something terrible. I feel sick to my stomach but when I turn around to try to go back, I realize that around the corner I just came from is the worst thing that could ever happen to me. Whatever is around the next corner might be bad, but it cannot be as bad as the last corner.

Even though I now know the next corner will not be as bad as the last, I wonder if I am up for it. The last corner has damaged me. Badly. I am not whole. I am not strong. Even though the next corner will not be as bad as the last I am not convinced I will survive it.

Someone comes toward me. I cannot tell if the person is male or female, even when he/she slows to pass me. We do not speak, but I am given the idea that what is around the next corner might not be bad. That possibility still exists, but there is also a possibility that around the next corner is something quite pleasant. Something nice.

I find that concept hard to grasp, to believe. I am in a place where only bad things happen to me. How can something good be next? My anxiety grows but as I look at the next corner I see that it is now, again, quite far away. Whatever is around the corner, I will have time to prepare for it. But, I wonder how I can brace myself for both the good and the bad? My anxiety grows as I am slowly propelled toward the next corner, the next challenge of my life. I wake up, but am not sure I was dreaming.

Cookies

Nashville is cleaning up after our horrendous flood of last week. My friend and neighbor has made cookies, brownies, fudge, and bread to take to the flood victims in our area. Over the course of several days she graciously allows me to accompany her, and we drive up and down one devastated street after the other distributing her goodies to volunteers and victims alike. We hear one tragic story, and then another, and I realize yet again that we each walk our own versions of hell. I am not the only one suffering. I am not the only one who is going through challenging times. I am not the only one who has lost a child. Other people have unrecoverable losses, too.

As the days progress the piles of refuse in front of people's homes grow ever larger. Some piles completely obscure the house behind it. This is all these people have. Everything they own is in a ruined pile of stenchy slop in front of their house.

But as I look closer, as the horror of the miles of trash grow more distinct, I see the individuality, rather than the generic. There is a tall, narrow set of wire shelves. Over there are two dining room chairs that might be salvageable. There is a metal picture frame that is not too badly damaged. Across the street I see a set of slimy glass vases that look unbroken. Colby would have loved this.

I miss Colby every second of every day but even more so now, here, because Colby would have loved these piles of flooded trash. I can see him walking the streets, talking with the home owners and volunteers, pitching in to help pull a dresser through a door, and directing a car through a particularly narrow spot on the road. With the combination of helping others and finding free stuff that might could, maybe, someday, be cleaned and re-used, Colby would have been in his element.

As someone in my online support group recently wrote, we grieving parents miss seeing our kids grow and develop through the natural stages of life. Colby would have loved to open his own thrift store. I will never get to see him do that. I will never get to see him help these flood victims or turn twenty-five, have kids or grow old. But worst of all, Colby will never get to experience these things either. Not that he would have enjoyed the pain and suffering the flood victims are enduring, but he would have loved the aftermath, the helping, the process of rebuilding. And he so would have loved all the "stuff." Even if it was covered in flood slime.

Goodwill

I have given a lot of Colby's "stuff" to the Goodwill. The most recent load I took over the day before it began to rain here in Nashville. The day before the big flood began. This particular Goodwill was underwater for much of the flood and yesterday when I drove by workers were pulling bins of merchandise out to the sidewalk to dry out. Not much looks salvageable.

I see a big wire bin of stuffed animals and my heart leaps into my throat. One of the boxes I just dropped off had a number of Colby's hats and stuffed animals in it. Not his most favorite "stuffies," those I will always keep, but many stuffed toys he played with and loved greatly. Nine months after Colby passed I was ready for another child to love those toys. I was not ready to see them covered in mud and slime. But I had to know if these damaged toys had once belonged to my son.

I started digging through the bin. I know the Goodwill frequently redistributes donations to other stores. I so hoped that was the case here. The workers looked at me from time to time, but they were busy salvaging what they could so they did not pay too much attention to me. And besides, I was probably not the only crazy person they'd seen that day. I took every stuffed toy out of that bin and each gesture of mine was more frantic than the last. Colby's beloved toys could not be here, water logged and destroyed. They just couldn't. And . . . they weren't.

When I realized that I put the toys carefully back in the bin and sat down on the curb and cried with relief. I was not sure why the safety of his toys was so important to me. I had voluntarily given them away. Wanted to give them away. But, I realized, I did not want them thrown away. I wanted the love Colby had shown those animals to live on in the shining eyes of another child. And maybe they still will.

My hope is that the toys were moved to another store before the flood. That they are safe and dry. Hopefully most are already in the arms of another little boy or girl. I'd like to believe that--have to believe it. For the alternative, for me, is unthinkable.

Memorabilia

I watch news coverage about our recent flooding here in Nashville. So many have lost everything they own. Everything. Thinking about the deep loss hundreds, thousands of people are experiencing makes me feel shaky. It brings me back to the early days when Colby's loss was so fresh and new. That's a terrible place to be.

It also reminds me that in my quest to sort through Colby's "stuff" I need to make sure the important things––photos, legal and other important documents, treasured memorabilia––are kept in a safe place. This means a fireproof/waterproof box, along with copies of everything that is possible to copy in a separate safe location on a different property.

This is an important task not only for me to do, but for everyone to do. Our flood has certainly shown those of us here in Nashville that disaster can strike in an instant. In a few seconds, everything you have can be destroyed. I've lost my son, I don't need to lose my most treasured mementos of him, too.

In the past few days I have gone back to feeling quite overwhelmed and the thought of the time involved to organize these things that are so important to me makes me want to curl up into a little ball and hide. I go back to my mantra of breaking large jobs into small tasks. On the Internet I find many sites that recommend taking photos of treasured items and then storing those files on your computer and also on several back up discs that could be kept at another home or in a safe deposit box. I can do photos. One thing at a time. Having a plan always makes me feel better.

My thoughts and prayers to all victims of the Nashville flood.

Poetry

Someone sent me this poem today. I do not know the poet, but her words express my feelings exactly. I could not have said it better if I tried.

Silver Tears
by Louise Lagerman


And so it begins
Silver tears falling like soft rain
Cascading downward on it's sad journey
Arriving at my empty soul and shattered heart
The silver tears come because we are apart
I try to see the beauty in things
I yearn to be . . . near the warm sun
I listen for laughter and beauty
but the sliver tears just bide their time
for they know
that behind every smile
every warm embrace
The reality of you being gone
will let the silver tears escape
and so it begins

© Louise Lagerman

Floods

We have just gone through the worst flooding in Nashville's history. Are still going through it. Devastation everywhere. Too mind-boggling to describe, but if you are interested in learning more, the Tennessean and WSMV have photos and video. I am fortunate. My only inconvenience has been a lack of electricity and limited access to roads.

Today I drive to a few places where Colby and I used to hike. Most I cannot get to; the rest are completely underwater. I am saddened beyond belief at the destruction these flood waters have caused. Will cause. So many people have lost everything they own. I so wish Colby were here because he would jump right in to help. My son would be right out there in the middle of it all lending a hand, or a smile, or a pat on the back. I have seen many stories over the past few days of neighbor helping neighbor. Colby should have been one of them. I want to do this in his place, but I cannot. I have helped horses and other animals, have driven through raging flood waters to be sure they are fed, housed, dry. But I do not have the emotional strength to help stranded people. I wish I did. I really wish I did.

The flood has caused many to lose their lives and I am reminded that everyone is someone's son or daughter. So many new grieving parents. I am surprised by how much this affects me emotionally. I am again overwhelmed, unfocused, jittery. My stomach does continual flip-flops and I feel like I cannot breathe. I wish Colby were here. I so wish he were here. That's the only thing that will help. But that will never, ever, be.

Relief

I wake up today and it is the first day in the more than nine months that Colby has passed that I have not felt completely overwhelmed. This is the first day I feel as if I can breathe, that I have some mental clarity. This is not to say that I did not cry several times today. I did. And it's not to say that I am always capable of making decisions about day-to-day things. I'm not. But this is the first day that I feel those things could maybe be a possibility at some point in the future.

I have been so mentally and physically tired working 16 hours a day 7 days a week just to keep up with my regular work load and the sorting of Colby's things. Part of this is because I got about a month behind in my work during the time Colby passed, and also because I now work about 25 percent slower than I used to. My brain just cannot think as fast as it did before. It takes me much longer to make daily decisions such as what to wear, what to eat, how to organize my day. I have to consciously remember to do household chores and run errands, take care of myself. Some days I do better than others. Many days I do not do very well at all.

But today I feel almost relaxed. It's as if the vice that has such a tight grip on my heart, on all my internal organs, has loosened just a fraction of an inch. I feel quieter internally, more able to relax, although I would not say that I am anything near what anyone would consider relaxed. These are interesting feelings for me. I can't remember the last time I felt like I could breathe, that internally I was not running a thousand miles an hour inside myself. It feels good.

I don't believe this is a permanent state for me. I believe, expect, I will slip back into the tight, jittery, overload before I can emerge again for a slightly longer time. But that I can find my way out, even for a peek, is good. Now if I can get the swirling, sick feeling that I've been punched in the stomach, and the fog-like mush in my brain that makes me feel that I am slightly concussed to go away. That would be good, too.

Tomatoes

I wasn't sure if I was going to plant a garden this year or not. That was yet another thing that Colby and I used to do together. Another place where there is a big, empty hole in my life. Each spring we'd look forward to choosing the plants, digging the holes, fertilizing, and then harvesting our crop. It makes me sad to think of experiencing all of that without him.

When we lived outside of Nashville we planted corn for a year or two, but our horse, Snoqualmie, always found a way to get out and eat it before we did. We tried watermelon and did well with those before we moved to the house I live in now. Melons apparently do not like the soil here.

Colby loved peppers, the hotter the better. A few years ago we planted habanero peppers. One day I added some to a pot of chili and then wiped my eye. I then had to crawl to the toilet so I could dunk my head in. The pain was excruciating. Then I called Colby who was down the road to come turn the stove off. My eyes were red and puffy for days. After that the habaneros were exclusively Colby's domain, those and the jalapenos, too.

Colby also loved growing zucchini, not necessarily to eat, but to see how big one would get. We took one of his zucchini to my mom's one summer. It was 42 inches long and had to ride in the back of the truck. He then spent the next few days seeing how far he could bat a baseball with it before it broke in two and he and my mom fed it to the raccoon family she takes care of.

We had the best success with tomatoes, though. One year we lived in a house that had a light pole in the side yard, next to the garden. With constant 24-hour light we had tomato plants that were 8 feet tall. Colby was five and pretended he was Jack in the Beanstalk as he climbed the tomato cages to pick the tomatoes. We always had enough fresh tomatoes to freeze and Colby loved adding them to spaghetti sauce, salsa, and the soups he'd make in the winter.

Yes, I debated planting a garden this year and eventually decided on just tomatoes. No peppers, zucchini, melons, cucumbers. wild onion, peas, beans, or herbs--all things we've grown in the past.Just tomatoes. It takes me several days, off and on, to prepare the plot and plant. Not because it is so much work, but because my tears keep getting in the way. Colby should be here to do this with me. It's the little things that mean so much, the little things that I remember and miss the most.

Hats

Colby loved hats. From the time he was a baby, he always had to have a hat on his head. When Colby was just a year old, my mother and I were in a department store at 100 Oaks Shopping Center here in Nashville. She was trying on raincoats and I turned around and Colby was gone. One second he was there, the next he was not. Colby was a baby who walked at 9 months, so by 12 months he was zooming along quite speedily.

Mom and I were frantic. I began calling Colby's name and the sales clerks at the store rushed around looking for him under racks and inside shelves. I was heading up an aisle when out of the corner of my eye I saw something fly through the air. I stopped and changed course. There Colby was in the middle of the ladies hat section standing in front of a mirror, a dozen or more hats strewn around him. He'd grab a delicate flowery or lacy hat off a rack, put it on his head, then giggle at himself in the mirror and fling the hat into the air. Fortunately, even though he had stomped on top of many of the hats and they were squashed out of shape, none was permanently damaged.

From then on, Colby wore every kind of hat he could get his hands on. Fireman hats, cowboy hats, Air Force captain hats, construction hats. For years Colby received a different kind of a hat on special occasions and today, as I am going through boxes in the basement I find the "hat" box. There they all are. The sailor hat, the miner's hat, the civil war style hat, the hobo hat. All of them. I hadn't expected to find them. They were in a box that was not marked, so when I opened it seeing the hats took my breath away. I had to stop, regroup, begin again to breathe.

I had saved many of Colby's things for his children. He so loved playing with items that were mine when I was young that I wanted to pass that along to his children. Of course, those children, my grandchildren, do not exist, will never exist. I am ready I think, to give some of the hats away so I divide the hats into two piles. In one pile are the hats that I remember him wearing the most. Those I will keep. For now. I convince myself that young children are waiting for the hats in the other pile. They need to go to the Goodwill. But before I box them up I take a picture of them, and then I sit on the floor and cry.

Suicide

A friend who was very kind to me after Colby passed has taken his own life. It happened days ago, but I just today heard the news. I am devastated. I ache for his survivors. I did not know him or his family extremely well, but he was a kind person, he was kind to me in a time and place when he did not have to be, and we just do not have enough of those people in our world.

I do not know the details of what happened and I do not have to know. Anyone who takes his or her own life has troubles that feel to them so overwhelming that suicide seems the only choice. Sadly, my friend is not alone. According to the American Suicide Prevention Network, roughly 33,000 Americans die by suicide each year. That is one suicide every sixteen minutes, eighty-nine suicides a day. There are more than 800,000 suicide attempts in our country every year, and 24 percent of the general population has considered suicide at some time in his/her life. Those are high numbers.

But most, if not all, suicides can be prevented. The American Suicide Prevention Network also states that more than 60 percent of adolescents and 90 percent of adults who die by suicide have depression or another diagnosable mental or substance abuse disorder. According to several nationally representative studies, in any given year, about 5 to 7 percent of adults have a serious mental illness.

It is my belief that mental illness is the most overlooked issue in our health care system today. People are dying when they do not have to. My son was one of those people. Now I add a friend, a kind friend, to the list. So let's get over the stigma that depression, bi-polar disorder, panic disorder, anxiety, and all the other mental illnesses bring. Let's find a way to treat everyone who is mentally ill and keep our families whole. Let's stop the need for mind-numbing, overwhelming, never-ending grief.

Rest in peace, my friend. I will never forget your caring kindness.